Hi all, I am new here. My husband has just been disgnosed with CBD after a year of Parkinson's medication. I think he is well advanced along this horrid road. In 3 weeks from a stumbling, happy, cognitive being, to a sad soul who cs no longer, walk, converse, feed himself, read, play sudoku, stay alert. He has had reduced stamina and poor gait for several years. I began to realise he could not live st home for much longer without alterations being made to various parts of the house. Getting him into hospital 3 weeks ago has confirmed my fears as he has degenerated so much in this period. I know he will not be allowed to return. That is so obvious! Despite the battle I have had to keep neurology on the team, they have confirmed my fears - that this is not Parkinsons or Altzeimers, but a much nastier monster.
I have read so many posts here that will help me understand what I have to help my man through. I don't look forward to it, but I find knowing helps me prepare my thoughts. I cannot believe he will endure another 2 years of this! I hope he will not have to!
I have gained great indight here! Far more than any specialist can give! My thoughts go out to all others in my situation. Love them while you have them. When the day is bad, don't give up. I have found surprising pearls of wisdom still pop out of his tired brain - as random as the rambling comments - but oh! such joy to realise he is still there, if I can reach him!
Thanks for being there! Hope I can also be of help to others!