Dear Jillann, Shasha, peterjones, myjual, JudyJ, Steph02, all of you, every one in this community who has been diagnosed with psp, how are YOU doing? Please do tell! I would like to ask you to vent here as much as we carers do!
I am afraid we carers and our woes dominate the discussion here, and maybe you all get tired of reading about it. I feel quite guilty sometimes that I haven't asked for your input more.
And selfishly, I would like to ask you to share as much as you can of what you are going through, on behalf of your fellow sufferers who can't speak for themselves, and to help me help my guy. For instance, the only real complaint he has made is about his sight. He, who almost never uses bad language (unlike me) said recently that the thought of losing his sight scares him "sh*tless". His sight seems to come and go. I never know what is in his field of view, or how it is being processed. Can anyone tell me what it's like? My guy has always been very stoic and stubborn, and his ability to communicate is getting worse.
Love and peace to everyone here. One way or another, we are all in this together, and I care about you all. Please write! Easterncedar