PSP Association
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CBD - Is this the end?

Got to hospital today to find my man on a drip and not very responsive!! And they had not bothered to let me know! Was NOT IMPRESSED. And made sure the message got through.

Nurse said she had seen patients in this condition wake up and recover. My comment to her was "Given his decline over the past 4 weeks, can you seriously tell me he will do that?" Her response was a predictable "No!".

He has had an xray and CT and all they found was a possible chest infection. From what I have read this is typical CBD finale. I am relieved it has come, albeit so very quickly. However, doctor has given intravenous antibiotic.

He remained peaceful all day, and responded with something like "OK" when I left. My youngest son came by to support me, and I have left him in the tender of the nursing staff while I try and get some sleep ready for tomorrow.

So far in this rotten disease, my understanding of what has been happening has been far closer to actual events than that of the doctors overseeing his care - apart from the neurologist who is on my wavelength, but still seems unsure of timeframe.

I hope I may be wrong - it would be lovely to talk to him again - but in all honesty I wonder if he will re-emerge - and if he does I imagine his brain has taken another battering and he may another step along the way.

How lovely it is to have a place to vent my thoughts - where you all understand! I hope this helps others too who are travelling along this same road.

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My thoughts and prayers are with you and your family at this difficult, uncertain time. Antibiotics can make a difference if given early enough but I'm sure you don't want him to suffer any more.

I do hope is is comfortable and free from pain for however long hi is still with you.

Sending you a comforting hug.

X

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Thank you NannaB!

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Thinking if you at such a difficult time and sending you my love.....

Pat....xx

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Thinking of you also, hopefully he is comfortable, sending you a great big hug, keep strong. Yvonne xxxx

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Hi, sending very big hug and lots of love at this trying and confusing time for you. Having spent a couple of days with S last week in hospital, at one stage, wondering if his heart could survive the pressure of his pain spasms, I understand totally what you are going through. Frightened one minute, because I thought his heart would stop, the next, scared that it wouldn't! This illness is so evil. Nobody deserves to be put through what our loved ones and us are suffering.

Thinking of you

Lots of love

Heady

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Honjen43. I understand. My husband is really starting to shut down we could be in the same situation soon. I am not sure how to articulate how I get through. You know you have love and empathy and humanity. Take those deep down and use them like a mini furnace to give you strength. All strength and best wishes to you and family.

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Hi hellebore . Again! This is my way. I have heard of others who write a book. Hope it will help others understand what can be expected - alonģ with that other factor that is CBD. Appreciate all the hugs and love from all of you. Jenny

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My heart goes out to you, such a difficult situation, one part of you hoping for him to pull through and the other hoping he has a peaceful and painless end of life. However things work out I send you my thoughts and love.

Kate xx

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I am thinking of you at this very sad time, sending my love x

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My sympathy. Sometimes I wish I could go to sleep and not wake up at other times I just want to go back to my well days and find it was all a dream. Not much chance of winning either way.

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My prayers are with you and your loved one xxx

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Love and prayers coming your way ...

Ketchupman

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