Amantadine syrup

[jzygirl]

Is anyone using amantadine syrup. If so how much are you using and how much are you suplied with. We have just changed from 2 x 100mg tablets a day to 10ml syrup once a day which equals 1x 100mg tablet. Also the one bottle we have been prescribed by gp is 150ml so that is only 15 days at half the amount the neurologist prescribed. Any advice please. Janexx

[Katiebow]

Sorry can't advise as my husband still on the tablets, doesn't sound right though does it, surely should have the same dose either way you take it. Isit more expensive in liquid form do you think? Could be the reason doctor not prescribing same dose I should ask him why!

[Hidden]

Sounds like you have a doctor who is arithmetically challenged which does seem to happen. Our neurologist here works out simple sums on her fingers. Or she did till I called her on it, she admitted to rubbish arithmetic skills, I confessed to having started my career in education as a maths teacher and guess who works out the sums now? Get back to that doctor asap for explanation.

[jzygirl in reply to Hidden]

Was the receptionist who was arithmetically challenged according to the lady that sorts out the prescription questions. Janexx

[Patriciapmr]

Hi Jane,

My husband was taking Amantadine tablets, two 100mg tablets per day, but they weren't making any difference, in fact he commented that he felt worse so the doctor advised him to stop.

We are at the moment waiting for a prescription for Atropine syrup which the PSP association advised to help with the build up of mucus and saliva which makes the voice very croaky. I do now know that this medication is very expensive and it has taken three months of pushing by myself to get it! It could be the same with Amantadine syrup so all I can suggest is for you to keep on at the doctors and find out the reason why or maybe contact your neurologist?

Hope this helps....

Very best wishes....Pat

[snapper]

Should definately keep to the same dose 100 mil is 100 mil makes no difference what form it comes in.

The dose seems to have been halved.

[jzygirl]

I contacted the gp's surgery and spoke to the persription queries person and as I started to tell her I thought the medication wouldn't last the 28 days she said oh dear I can see why you are phoning me. The person (receptionist) has made a big mistake on the amounts he has been given on two items he needs double on one item and you should have at least four bottles of the Amantadine not one because it should be twice a day not once and the one bottle would only last just over a week. So all sorted now.. Janex

[Patriciapmr in reply to jzygirl]

Glad you've got it sorted but its unbelievable isn't it? Something that is so important to have been incorrectly prescribed! I have come to the conclusion that you have to double check and push for everything yourself to make sure you get everything available and that it is correct, sadly it seems to be a sign of the times!

Love and hugs....Pat ️xx

[jimandsharynp]

Our Neurologist at the University said we could try it but that the results were mixed from those who had tried it. We didn't try it due to side effects. Good Luck but remember PSP is NOT a one-size-fits-all disease and each patient is somewhat different is some areas. Jimbo

[GenaBenedict]

HI THE NEUROLOGIST THAT MISS DIAGNOSED MY PD GAVE NE AMANTADINE & I HAD HORRIBLE HALUSINATIONS. I WOULD NEVER TAKE ITV AGAIN, AS FOR MY DEPRESSION MY FAVORITE CARER IS NOT GOMINGBACK TO HELP ME I'M REALLY UIPSET. SO JANEXX AND 1947 I AMNOT VERY HAPPY PERSON TODAY. GENA

[jillannf6]

CHINUP GENA

YOU ARE HAVING A DIFFICULT ITME ARENT YOU

BUT YOU WILL FIND ANOTHER CARER TO HELP EYOU THRO ALL THIS

ARE U IN THE UK OR USA?

lol jILL

[GenaBenedict in reply to jillannf6]

JILIAN .... USA THE PACIFIC NW, YES,MY SISTER IN LAW CAME BY YESTERDAY TO VISIT. SHE TOLD MY DAUGHTER LOVES ME VERY MUCH AND IS AFRAID TO TELL ME THAT SHE IS AFRAID TO SEE THE PROGNOSIS...... SO I'M GOING TO HAVE A SOCIAL WORKER TALK TO BOTH OF US . I HAVE AN APPT WITH A NEUROLOGIST THAT SPECIALSES IN PSP & THE RESULTS IT HAS ON FAMILY & CARERS. THANKS GENA