Thanks guys and gals for all your comprehensive responses , they really do help. There are so many variables aren,t there . It depends how far the down the PSP path you are - and what different twists and turns it has taken .I think what I have learned from you all is that you encourage when you can and at other times just surrender to the inevitable . My mother used to say "do what you can and can what you can't " ! I have absolutely no idea what she meant and if I asked her she would give an enigmatic smile and say " it's obvious isn't it " leaving me none the wiser .I do find it helpful talking to you all on this site as it clarifies things in my mind where I have, quite often just through tiredness, got bogged down with how to look at things . I also suffer from The Little Red Hen syndrome - this was a children's story about a hen who was trying to bake a cake and asked the other animals one by one to help and when they wouldn't said "well I will do it myself " the dreadful moral of the story to me seemed to be don't ask for help as you won't get any so it's best to get on and do the job by yourself . I am sure a psychologist would have a field day with it and probably my interpretation of it- it has scarred me for life and even plays a large part in my daughter's life . I suppose what I am saying in a round-a-bout way is that I have always found it difficult to ask for help preferring to "do it myself " but this site has been an eyeopener for me in the generosity of spirit and the advice and experiences that come pouring out from all round the globe .Whether it is the responses of PSP sufferers who so bravely carry on in the face of so many problems or carers who have illness or ailments themselves and yet find time to be sympathetic and understanding- at long last I feel able to ask for help.And that's quite an admission for me - thanks .