TOO MUCH INFO ON DIAGNOSIS?

HI I WAS DXD WITH PSP OVER 4 YR S AGO AND TOOK IT ALL ON BOAR D AND AM STILL HERE NOW USING A WHEELCHAIR INDOORs and Out to prevent my falling over os much which it has done i now only fall in the house about 1 2 timesa dau which is much better than i was doing

i have also just been awarded CHC funding t0 make it easier for me to continue living a theme for the next stage of my life which now means i can get out more easily without my partner having to

take me by car always\

so despite having a temrianl illlenss i must have the slow sort fo PSP and can see myself continuing until my early 70s (d xd aged 66 and still here upright most of the timeapart fm when i am flat on my face or my back having fallen over

but i always blog on here and it has been a life-saver fro me having this site

lol jill

;-)

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9 Replies

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  • Hi Jill, lovely to hear how upbeat you are. This site is a life saver to us all, especially when we get to chat to inspirational people like yourself and Peter Jones, who are able to put the other side across, to help us carers know if we are doing the right thing or not.

    Keep posting Jill, we all need you!

    Lots of love and hugs

    Heady

  • JHI HEADY

    QTA 4 YOuR REPLY

    I AM GOING TO MY TAI Chi CLASS NOW

    LOL JILL

  • Blog on Jill - always good to hear from you. Georgepa

  • Hi Jill, as the others said, keep blogging. I hope you feel relaxed after your Tai Chi class. I think it is brilliant you make the effort to attend. Keep on blogging. It's great to hear from you.

    Keep upright.

    X

  • You are an amazing person Jill, how you have coped with this terrible disease, take care and I enjoy all your posts I wish you all the best. Margaret.

  • HI MARGARET

    HTANKS FOR YOUR SUPPORT AND MANY THANKS FOR WHAT YOU HAVE TOLD US ABOUT ROSE

    I WISH YOU PEACE AND HOPE HTATH YOU HAVE THE STRFNGTH TO CARRY ON WHEN ROSE FINALLY DOES GO..

    LOL AND HUG SAND XXXX TO YOU

    JILL

  • Wonderful, Jill. You are such a bright spirit. As they say over here, You GO, girl!

  • Hi there Jillann !!!

    Always makes me feel better to read your posts . So happy about your getting the CHC funding ! That's wonderful !! What a great difference that should make !! Any assistance is a GOOD thing for sure ! Hope that you stay out of trouble and that all of your landings are soft !! Hope that Spring is also shaping up over there.

    Lots of love from NY,

    Elise

  • hi elise

    good to hear fm you on the other side of the pond!

    and i am afraid that all of my landing safe not soft ones unfortunately - but no more broken bones as yet (since dxd anyway which is the main point

    lol jill

    :-)

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