We have been fighting the NHS for over 7 years, mum has rheumatoid arthritis and we been telling her rheumatologist that something else is wrong. Mum was admitted to hosp 3 weeks ago for tests which came back as probably psp. The neurologist said because it's end stage it's difficult to diagnose a definate diagnosis because it has already progressed but it is definitely a form of Parkinsonism, mum has recent falls she now immobile unable to understand her speech and she cannot swallow just had a peg tube inserted. Doctors have now discharged mum with no support for her or us as a family. Feel so angry
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