Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,356 members • 10,544 posts

All posts for January 2016

LASIK while on Blood Thinner

Has anyone had LASIK since being put on blood thinner? Eye surgeon is concerned that putting pressure on eye to create flap will cause a bleed and is not keen...

Has anyone had LASIK since being put on blood thinner? Eye surgeon is concerned ...

tobiasm

•8 years ago

2 Replies

APS during pregnancy: treatment and monitoring

Hello all, I am delighted to find this site and wondering if someone might be able to help. I have been prescribed asprin, progesterone, fragmin and steroids...

Hello all, I am delighted to find this site and wondering if someone might be ab...

pregnancy2016

•8 years ago

17 Replies

Advise please... Sorry, long post!

Hi, I have lurked for a while trying to pluck up courage to post... My name is Laura and I am 53. I was very ill 10 months ago, taken into hospital suffering...

Hi, I have lurked for a while trying to pluck up courage to post... My name is L...

Hidden

•8 years ago

11 Replies

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A supportive wife

Hi all. I am not an APS sufferer but my husband is. He was diagnosed about 9 years ago after suffering a TIA. From time to time he struggles about not been...

Hi all. I am not an APS sufferer but my husband is. He was diagnosed about 9 yea...

08395c

•8 years ago

6 Replies

Changing from quinoric to zentiva hydroxychloroquine sulphate.

Hello everyone. I have been in quinoric for 7 months which has really helped symptoms a lot. I collected my prescription yesterday and it was a different...

Hello everyone. I have been in quinoric for 7 months which has really helped sy...

Tinythepanda

•8 years ago

2 Replies

Wondering when will things get better?

Having a really, really rough time of it lately. I've just completed a three year degree, it was a real struggle for me as it was a very complicated subject...

Having a really, really rough time of it lately. I've just completed a three ye...

Tomcat

•8 years ago

3 Replies

Sleep deprived

Hi, having recently been diagnosed I have been given Simvastatins and Iron tablets, yet when I take the statins I cannot sleep! I'm still in pain with my legs...

Hi, having recently been diagnosed I have been given Simvastatins and Iron table...

Zaraski

•8 years ago

14 Replies

Iron and Ferritin low anyone else?

I was wondering the symptoms of this apparently I'm now anemic, i can't eat beef and I have crohns and they want to do iv infusions they have a shortage of...

I was wondering the symptoms of this apparently I'm now anemic, i can't eat beef...

determinedandstrong

•8 years ago

8 Replies

neuropathy

I found out today that the pain and numbness in my feet is neuropathy associated with my APS. Thinking back, it's the first symptom I probably had of the APS...

I found out today that the pain and numbness in my feet is neuropathy associated...

mylafont

•8 years ago

12 Replies

Hi

I was diagnosed with Hughes Syndrome about 18 months ago following tests after a TIA. I am now struggling with other illnesses which I have never had before!...

I was diagnosed with Hughes Syndrome about 18 months ago following tests after a...

M_Hem

•8 years ago

9 Replies

morning blindness

diagnosed APS in 2009 and also Sjogen's.......on apirin only due to not having clots or anything. Twice last week i woke to not being able to see out my left...

diagnosed APS in 2009 and also Sjogen's.......on apirin only due to not having c...

cami

•8 years ago

12 Replies

Big blood clots with period

Hi have aps ..put on asprin with warf ...In Nov bleeding started end Dec thought must b period ..now 2nd week big clots picked one up size of palm ur hand...

Hi have aps ..put on asprin with warf ...In Nov bleeding started end Dec thought...

ftzer

•8 years ago

7 Replies

Is APS hereditary?

My sister was recently diagnosed with APS trying to help as much as I can. She keeps encouraging me to be tested. Don't have her symptoms. She has it quite...

My sister was recently diagnosed with APS trying to help as much as I can. She k...

Nanny23

•8 years ago

13 Replies

In Excruciating Pain and Sleepy all the time???

I knew Dar 58 has these symptoms, but do they ever stop! I'm getting very frustrated and overwhelmed! I know it's only since October that I've been diagnosed,...

I knew Dar 58 has these symptoms, but do they ever stop! I'm getting very frustr...

Debbweb01

•8 years ago

3 Replies

Proffessor Khamashta

Does anyone know if he will be returning?

donnabrain

•8 years ago

3 Replies

Self testing question

Hi everyone, I think I said a while back after years of trying, then surviving CAPS I finally got to home test my own INR. My issue relate to my local...

Hi everyone, I think I said a while back after years of trying, then surviving C...

lloydyuk

•8 years ago

11 Replies

Overwhelmed and Exhausted

Hello my Friends in this Forum! It's Deb! Sorry I havnt been around, but going thru too much too soon after being DX'd! Yesterday marked 1 year of the day I...

Hello my Friends in this Forum! It's Deb! Sorry I havnt been around, but going t...

Debbweb01

•8 years ago

8 Replies

Frankincense Oil

Hi all, I am having a very tough time at the moment. I've had a constant migraine since around April 2015. I'm awaiting a lumbar puncture to check pressures...

Hi all, I am having a very tough time at the moment. I've had a constant migrain...

Louise_Davies

•8 years ago

6 Replies

Confused

I was diagnosed with APS after having a DVT and multiple PE's. Went to Mayo Clinic in Rochester, they told me my numbers were positive, but not high enough to...

I was diagnosed with APS after having a DVT and multiple PE's. Went to Mayo Clin...

Capesha

•8 years ago

4 Replies

Happy New Year, 3 years and still wondering

Happy New Year everyone. This is just a quick update and to see if anyone else has been in the same boat. Since my last post I have had a Endometrial ablation,...

Happy New Year everyone. This is just a quick update and to see if anyone else h...

Kittybaker

•8 years ago

4 Replies

Hello

Hi I listed here about 6 months ago regarding be unable to get gp to refer me to correct places. Still haven't gotten anywhere but told I may have fibromyalgia...

Hi I listed here about 6 months ago regarding be unable to get gp to refer me to...

Jazz3914

•8 years ago

1 Reply

INR HELL.....

Had my inr taken at 6.4 previously 5.6 but its scary how it rises.... recently had op and went through bridging protocol to get Inr to 1ish but just can't get...

Had my inr taken at 6.4 previously 5.6 but its scary how it rises.... recently h...

loppylou68

•8 years ago

11 Replies

dizziness and light headed

Hi there, Has anyone else experienced dizziness or severe light headedness? I have been experiencing this for about 4 months. No change in my medication in...

Hi there, Has anyone else experienced dizziness or severe light headedness? I h...

JOEW

•8 years ago

15 Replies

What is plaquenil used for? My sister has APS and has terrible pain and swelling on joints will plaquenil help her?

What is plaquenil u sister Debbie has terrible pain and swelling in joints. Will this help her?

What is plaquenil u sister Debbie has terrible pain and swelling in joints. Will...

Nanny23

•8 years ago

5 Replies

Newly diagnosed

Hi I'm newly diagnosed an have spent a recent 7 week stay in hospital due to another illness idiopathic intracranial hypertension and having shunt surgery, but...

Hi I'm newly diagnosed an have spent a recent 7 week stay in hospital due to ano...

Emmakana

•8 years ago

3 Replies

new diagnosis

Hi all! I have just been diagnosed with Lupus . I've had APS for about 15 years and am doing pretty well. Well this Lupus thing has really thrown me for a loop...

Hi all! I have just been diagnosed with Lupus . I've had APS for about 15 years ...

finnhop

•8 years ago

15 Replies

Problem with hospital I am admitted to does not hold Zantiva (plaquenil) hydroxychloroquine

I was admitted to hospital out of home area and now the hospital refuses to give me the above named hydroxychloroquine and refuses to give me from a Nursing...

I was admitted to hospital out of home area and now the hospital refuses to give...

Peecue

•8 years ago

15 Replies

APS/Hughes and Factor V Leiden

Hello everyone! This is Gilda from Palm Beach Gardens, FL, anyone else on here from the States? My question to the APS group is whether any of you have also...

Hello everyone! This is Gilda from Palm Beach Gardens, FL, anyone else on here ...

GILGOMEZ

•8 years ago

9 Replies

INR

What is it that makes your INR suddenly jump from 2.2 to 3.4 in two weeks? Puzzling me. Saw consultant yesterday.I asked what is happening to me when I have...

What is it that makes your INR suddenly jump from 2.2 to 3.4 in two weeks? Puzzl...

Fra22-57

•8 years ago

12 Replies

Neurologist in Newcastle upon Tyne uk

Anyone know of one near by that's hughes friendly? Thanks H

hanbur

•8 years ago

8 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for January 2016

LASIK while on Blood Thinner

APS during pregnancy: treatment and monitoring

Advise please... Sorry, long post!

A supportive wife

Changing from quinoric to zentiva hydroxychloroquine sulphate.

Wondering when will things get better?

Sleep deprived

Iron and Ferritin low anyone else?

neuropathy

Hi

morning blindness

Big blood clots with period

Is APS hereditary?

In Excruciating Pain and Sleepy all the time???

Proffessor Khamashta

Self testing question

Overwhelmed and Exhausted

Frankincense Oil

Confused

Happy New Year, 3 years and still wondering

Hello

INR HELL.....

dizziness and light headed

What is plaquenil used for? My sister has APS and has terrible pain and swelling on joints will plaquenil help her?

Newly diagnosed

new diagnosis

Problem with hospital I am admitted to does not hold Zantiva (plaquenil) hydroxychloroquine

APS/Hughes and Factor V Leiden

INR

Neurologist in Newcastle upon Tyne uk

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