Happy New Year everyone. This is just a quick update and to see if anyone else has been in the same boat. Since my last post I have had a Endometrial ablation, which has worked 50%. It has made life somewhat more bearable.
I was referred to the Nuerology department in April as my memory has been progressively getting worse, as has my pins and needles. A change in Medication from Fragmin to riveroxaban and back and then back onto riveroxaban hasn't alleviated any of the symptoms. The pins and needles are just a daily occurrence that last now for hours. Unfortunantley Nuerology has twice lost my ref feral from my specialist, so they have now given me an emergency appointment next Tuesday, so fingers crossed for some answers!
I would like to know if any others are in the same boat as myself.? I have been diagnosed with APS now for three years, and I seem to be getting other symptoms. I haven't had a blood clot or PE for over a year so that is great, but the tiredness, joint pain and memory loss is at its worst, something I never experienced after my first clot.
any help would be appreciated. I have recently increased my working hours over the past two months and I literally feel drained half of the time. It is getting very frustrating. I am trying to keep fit, active and a low BMI to help with my illness but I don't seem to get it at a stable level, it dips daily.
Any ideas or suggestions?
I am under Dr lewis at Nevile hall, who is brilliant, and I am seen in-between fortnightly and monthly so they are trying everything that they can.
Thank you for reading