Hi

[M_Hem]

I was diagnosed with Hughes Syndrome about 18 months ago following tests after a TIA. I am now struggling with other illnesses which I have never had before! I have had Pleurisy, then eye problems, then infections and have now got another lung infection. I have always been well before, could any of this be due to having Hughes Syndrome? I don't really have anyone I can ask.

Thanks for any replies in advance

[Manofmendip]

Hello and welcome.

We are not medical professionals on here, so we cannot give you an opinion on the matters that you ask for advice on.

A couple of questions that may help us to help you:

1. Where are you from?

2. You say that you have no one to ask but who is managing your APS?

Dave

[M_Hem in reply to Manofmendip]

Hi Dave,

Thanks for your reply.

I am from Bury, near Manchester and I have been discharged from the specialist. I just have to go and get my INR checked regularly.

Should I still be seeing a specialist?

Michele

[Manofmendip in reply to M_Hem]

Hi Michelle

Many of us have have regular checks with an APS consultant or registrar, to ensure that medication is correct and appropriate to our current condition.

I see that my colleague, Mary, has given you the link to the charity's list of APS specialists.

Keep in touch with us all.

Dave

[M_Hem in reply to Manofmendip]

Thanks for the help and advice Dave, I am finding the site very useful and will be a regular visitor from now on.

[Manofmendip in reply to M_Hem]

That's good.

Nice heritage railway station you have in Bury, with a great pub attached too.

Dave

[MaryF Administrator]

Hi and hello, firstly where are you located, this is important as we do have a list of recommended specialists in the UK, and if not in the UK, I/we will still try to endeavour to help. If you have trouble with your current medical provider I will endeavour to try and help you through and out the other side. MaryF

[M_Hem in reply to MaryF]

Thanks MaryF,

I am from Bury, Lancashire which is 11 miles out of Manchester.

Michele

[MaryF Administrator in reply to MaryF]

hughes-syndrome.org/self-he...

MaryF

[M_Hem]

Thanks for your reply, it's good to hear that things should get back to normal from someone on here.

I know exactly what you mean about putting everything down to Hughes Syndrome and do try not to even consider it most of the time. I think, probably like everyone else I'm not used to actually ever having to take time out to get better from anything! I think that comes with being a parent