Neurologist in Newcastle upon Tyne uk - Hughes Syndrome A...

Hughes Syndrome APS Forum

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Neurologist in Newcastle upon Tyne uk

hanbur profile image
8 Replies

Anyone know of one near by that's hughes friendly?

Thanks

H

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hanbur
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MaryF profile image
MaryFAdministrator

Hi you don't necessarily need a Neurologist more likely a Rheumatologist to start with with a Haematologist added in, here is our list of specialists: hughes-syndrome.org/self-he...

Some people do ok with a Neurologist, some on here have had a good one who have recognized the condition, diagnosed and helped, but many have not had such luck with this branch of medicine regarding Neurology.

MaryF

hanbur profile image
hanbur in reply to MaryF

I have seen a rheumatologist and he wants me seen by a neurologist. Thanks

MaryF profile image
MaryFAdministrator in reply to hanbur

Ok, well if there is not an actual recommended one on our list, then I expect he will find you one himself, is your Rheumatologist on our list? The reason I ask, is if they have some working knowledge of the condition and are not on the list, the charity will wish to know, as it is a list which is slowly growing over time to help patients and GP's. MaryF

hanbur profile image
hanbur in reply to MaryF

The rheumatologist is not a hughes specialist. He is referring me to St Thomas to see a rheumy there. In the mean time he said I should see a neurologist asap too due to ?fits and other neurological symptoms. He doesn't know of any hughes friendly neurologists which is why I ask.

Thanks

MaryF profile image
MaryFAdministrator in reply to hanbur

Great he is referring you to St Thomas, do send him the list of specialists, so he can ask for one of them, also send him the whole charity website. You can get the email for his secretary and write on that marked for his attention. Best of luck. MaryF

hanbur profile image
hanbur in reply to MaryF

Thanks Mary. Will do.

Manofmendip profile image
Manofmendip

Hi there.

I was first diagnosed with APS by David Bateman, in Bath.

David is now in Sunderland:

Dr David Bateman, consultant neurologist at City Hospitals Sunderland, - See more at: brainandspine.org.uk/news/2...

I made a training video with him in Bath, about APS and Headache.

Best wishes.

Dave

hanbur profile image
hanbur

Perfect! Thank you! !

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