Hello everyone! This is Gilda from Palm Beach Gardens, FL, anyone else on here from the States?
My question to the APS group is whether any of you have also tested positive for Factor V Leiden? I have been on warfarin (Coumadin) for 15 years (after DVT's, multiple PE's and positive Factor V Leiden). I recently was also diagnosed with APS and my rheumatologist has added Plaquenil to the mix. According to him and my neurologist, that should further help fight the clotting, the painful joints and flare ups and my fibromyalgia.
I also have had TIA's and suffer hemiplegic migraines. Although better controlled just now, this summer was horrendous with never ending thunderstorms which are a trigger for my migraines. I have awful varicose veins and circulation in my legs, my ankles swell, I am cold intolerant but yet get hot and can't sleep when my fibromyalgia pain flares up.
I use Lovenox as a bridge from warfarin when getting ready for any invasive procedure such as oral surgery or a colonoscopy. I also have IBS and recently had a bout of intestinal bleeding and acute pain which lasted for four days. Had my INR checked at the hematologist (finger prick method) and vein drawn CBC with Diff and Sed rate. Hemaglobin was within normal range, INR was 1.4 (weird!) and white count a little elevated. Maybe I just had severe gastritis? Anyway I have an appointment with the gastro specialist on Monday so dreading another colonoscopy in the near future.
That's my story.....curious to hear how many might have similar symptoms or the Factor V Leiden.
Thanks and happy and healthy 2016 to all!!!