Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,355 members • 10,542 posts

All posts for April 2015

Itching, sore lumps and odd bruises

I've read posts about itching due to aps but usually on limbs and with petachiae. I was wondering if itching on your back and behind knees could be...

I've read posts about itching due to aps but usually on limbs and with petachia...

janeingirona

•9 years ago

4 Replies

Please read this, it may help you!

Hello again everyone, I've been following all your posts, it has been heart breaking to read what a lot of you are going through. I know how you all feel I...

Hello again everyone, I've been following all your posts, it has been heart bre...

Chef_Spartacus

•9 years ago

10 Replies

Red marks is it due to antiphospholipiid

Hi can i ask if anyone has had little red marks on their body and is this related to having antiphospholipiid, , Also has anyone had problems...

Hi can i ask if anyone has had little red marks on their body and is this ...

spider7

•9 years ago

8 Replies

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swollen outer thigh,

yesterday a small area of my outer thigh was swollen above my knee. knee is not swollen or painful. swelling extended to entire upper thigh, outside....

yesterday a small area of my outer thigh was swollen above my knee. knee is not...

winterl

•9 years ago

4 Replies

Chest infections

Hi, I'm having problems at work with short term sick leave. I have Antiphospholipid Syndrome and suffer from frequent chest infections. As Antiphospholipid...

Hi, I'm having problems at work with short term sick leave. I have Antiphospholi...

_joolz354

•9 years ago

9 Replies

Circulation or water?

Hi I am APS diagnosed and currently on rivaroxaban 20mg daily recovering from 3rd DVT in an effort to be mobile and aid my return to work *bit of pressure to**...

Hi I am APS diagnosed and currently on rivaroxaban 20mg daily recovering from 3r...

AngelinaN

•9 years ago

6 Replies

P.E.s, what do they feel like.

What is you feel in your chest when you have one? How often do you feel the pain?

What is you feel in your chest when you have one? How often do you feel the pai...

mylafont

•9 years ago

18 Replies

Low Blood Pressure?

Hi Everyone - Over the past few months I have been have episodes where I am light headed, nauseous and dizzy. In the past I have been checked and nurses have...

Hi Everyone - Over the past few months I have been have episodes where I am lig...

UKWendy

•9 years ago

5 Replies

Skin

Does anyone here have a diagnosis of petechiae or similar? I received this today I've been aware of it slowly getting worse for a very long time however this...

Does anyone here have a diagnosis of petechiae or similar? I received this tod...

lloydyuk

•9 years ago

19 Replies

Migraines returned

Hi all, not feeling well at all, migraines have returned whilst on prophylactic tinzaparin. Only saw the doc. 6weeks ago seemed to be okay then ,now feeling...

Hi all, not feeling well at all, migraines have returned whilst on prophylactic ...

Elfie1

•9 years ago

26 Replies

APS/Sjorgren's doctor in Barcelona

Just thought I'd ask.... ... my daughter has APS, Sjorgrens (along with EDS, dysautomnia, POTS etc) and thankfully I have managed to pay for her to see the...

Just thought I'd ask.... ... my daughter has APS, Sjorgrens (along with EDS, dy...

floss112

•9 years ago

1 Reply

Ramipril side effects

I'm due to have surgery on my heart in the next month & Prof Chambers at Guys prescribed Ramipril in preparation which is all fine but the cough and tonsol...

I'm due to have surgery on my heart in the next month & Prof Chambers at Guys pr...

Herbs77

•9 years ago

10 Replies

? Is anyone taking Rivoraxaban or xarelto

I was on Clexane 60 mg twice a day by prof Hughes. I am switching to Rivoraxaban or Xarelto 10 mg tabs. I am curious what dosages other patients are taking. I...

I was on Clexane 60 mg twice a day by prof Hughes. I am switching to Rivoraxaban...

designer16

•9 years ago

8 Replies

Pradaxa

Hi, My daughter has APS & Sjorgren's, and, although the GP happily tells us her thyroid is 'normal', Prof Hughes is not convinced! She has had no documented...

Hi, My daughter has APS & Sjorgren's, and, although the GP happily tells us her...

floss112

•9 years ago

13 Replies

difficult to concentrate

Hi, I had a APS catastrophic in 2006, I fall on the street in Paris with clots in all organs. Today, I'm living in Austin, Texas. Since two weeks, I have a...

Hi, I had a APS catastrophic in 2006, I fall on the street in Paris with clots ...

xavart

•9 years ago

18 Replies

Question about acetaminophen

In her book, Positive Options for Antiphospholipid Syndrome, Triona Holt says that acetaminophen (Tylenol) can affect your INR. ( Page 118) Does anyone know...

In her book, Positive Options for Antiphospholipid Syndrome, Triona Holt says t...

Rosemary76210

•9 years ago

11 Replies

Positive ESR blood test and potential APLS

Hi all, I have recently undergone my 2nd batch of tests for APLS following the loss of our daughter due to HELLP syndrome and extreme prematurity. I'm...

Hi all, I have recently undergone my 2nd batch of tests for APLS following the...

Hidden

•9 years ago

10 Replies

Aneurysm and Warfarin

Hi all, I was diagnosed with APS in January and am on warfarin now. My INR rarely gets above 2 and I've been haranguing the blood clinic to make it higher. I...

Hi all, I was diagnosed with APS in January and am on warfarin now. My INR rare...

minnime63

•9 years ago

11 Replies

Hughes Syndrome and adoption process

We are going through the adoption process and one of the requirements is a doctors note confirming good health. I'm not sure if a Hughes Syndrome diagnosis...

We are going through the adoption process and one of the requirements is a docto...

maustria

•9 years ago

5 Replies

Magic? :)

For those of you who have Hughes diagnosis and have been properly anti coagulated for some time... Did you suffer from very extreme fatigue before diagnosis?...

For those of you who have Hughes diagnosis and have been properly anti coagulate...

AngieRae

•9 years ago

24 Replies

lupus anticoagulant

Thanks-you for all your support and acceptance over the past few weeks. I tested negative for lupus anticoagulant. So now I have a positive and a negative. I'm...

Thanks-you for all your support and acceptance over the past few weeks. I tested...

AdamHenkels

•9 years ago

1 Reply

Self testing approval in the USA

Do any of the USA members have any information on if or when self testing will be approved in the USA? With parallel testing (at least at first) and education,...

Do any of the USA members have any information on if or when self testing will b...

mylafont

•9 years ago

70 Replies

Possible APS, on Xarelto

I had one positive blood test and am awaiting to test again in 3 months. I have pe's in both lungs currently which lead to the blood tests. My question is...

I had one positive blood test and am awaiting to test again in 3 months. I have...

aburch

•9 years ago

11 Replies

Interesting

I was looking into a few of my own symptoms past and current that are tbh odd. At the time of my illness being very serious the medics were and have been...

I was looking into a few of my own symptoms past and current that are tbh odd. A...

lloydyuk

•9 years ago

10 Replies

memory loss

I wonder if anyone else has had this? Last Wednesday I was feeling ill with backache, headache and aching legs. I went to the hospital and when leaving I...

I wonder if anyone else has had this? Last Wednesday I was feeling ill with back...

pluto5

•9 years ago

15 Replies

"warfarin"...

Hi, to All of you out there who are suffering.., And to all those lovely ladies in Admin!!..Fab etc. And too Everyone who have sent replies, I Hope your still...

Hi, to All of you out there who are suffering.., And to all those lovely ladies ...

popshaw21

•9 years ago

3 Replies

APS and lupus symptoms.

Hello all, It's been a while since I last posted however i read almost every post and found the information so helpful. I was finally diagnosed as having the...

Hello all, It's been a while since I last posted however i read almost every po...

Tinythepanda

•9 years ago

2 Replies

Lupus Anticoagulant

Not that I'm stressing, but I'm am. Still waiting for the second blood test results. I looked at my Northwestern Hospital results from December and noticed I...

Not that I'm stressing, but I'm am. Still waiting for the second blood test resu...

AdamHenkels

•9 years ago

1 Reply

ms

The other day in the afternoon, I suddenly lost my memory for a few hours. Any answers to this?

The other day in the afternoon, I suddenly lost my memory for a few hours. Any a...

pluto5

•9 years ago

7 Replies

Sorry for the absence

WELL I GUESS I CAN BEGIN WITH BLOOD BEEN EXTREMELY BAD -- TESTING EVERY 3 DAYS AGAIN JUST COMPLETELY OUT OF CONTROL.5.0 ONE DAY 1.3 3 DAYS LATER. BACK...

WELL I GUESS I CAN BEGIN WITH BLOOD BEEN EXTREMELY BAD -- TESTING EVERY 3 DAY...

jetjetjet

•9 years ago

8 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for April 2015

Itching, sore lumps and odd bruises

Please read this, it may help you!

Red marks is it due to antiphospholipiid

swollen outer thigh,

Chest infections

Circulation or water?

P.E.s, what do they feel like.

Low Blood Pressure?

Skin

Migraines returned

APS/Sjorgren's doctor in Barcelona

Ramipril side effects

? Is anyone taking Rivoraxaban or xarelto

Pradaxa

difficult to concentrate

Question about acetaminophen

Positive ESR blood test and potential APLS

Aneurysm and Warfarin

Hughes Syndrome and adoption process

Magic? :)

lupus anticoagulant

Self testing approval in the USA

Possible APS, on Xarelto

Interesting

memory loss

"warfarin"...

APS and lupus symptoms.

Lupus Anticoagulant

ms

Sorry for the absence

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