Aneurysm and Warfarin

[minnime63]

Hi all, I was diagnosed with APS in January and am on warfarin now. My INR rarely gets above 2 and I've been haranguing the blood clinic to make it higher. I still have all the symptoms I had before. Some of you may remember I posted about two "events" last month which I thought were TIAs. I was sent to the stroke referral unit, who put me through another MRI. The specialist later phoned me to say there was an irregularity in one of the arteries and that he was sending the scan for analysis. Just had a call to tell me that King's College Hospital have looked at it and found an aneurysm (incidental basilar artery aneurysm) and I have an appointment to go and see them. They are not going to do anything about it.

Well obviously I looked it up online and risks for rupture include anti-coagulation! This makes me doubt whether I can increase the warfarin doseage, or even if they'll let me stay on it. Does anyone have similar experience? What was done about it? Or do I just continue feeling like a ticking time-bomb?!

Thanks everyone x

[Manofmendip]

Hello

Who is managing your APS treatment?

Best wishes.

Dave

[minnime63 in reply to Manofmendip]

Hi Dave, I saw a haematoligist before starting on warfarin and due to see her in May. That's it! I saw the rheumatologist once, who diagnosed me and then discharged me. Waiting for my doc to refer me back so I can start on Plaquenil.

[Manofmendip in reply to minnime63]

Where are you from?

[minnime63 in reply to Manofmendip]

I'm in Cliffsend, Kent. Nearest hospitals are Margate or Canterbury.

[Manofmendip in reply to minnime63]

Thanks.

I agree entirely with what my colleague APsnotFab has advised you to do.

Dave

[spider7]

Hi just Wanted to ask if anyone else has had red spot apearing on the skin is it part of the syndrome, one blood spot has appeared on my face. So I am a little concerned.

My doctor said it was part of getting old.

[minnime63 in reply to spider7]

I've had tiny red spots starting to appear on the lower parts of my legs. I assumed it was to do with blood flow as the circulation is very bad - purple markings, excema and varicose!

[spider7 in reply to minnime63]

That for your feedback

[CaliforniaGail in reply to spider7]

Search on our HealthUnlocked site for petechiae

[MaryF Administrator]

Hi good luck with receiving more detailed advice regarding your questions, know you are armed with a little more information, which I can't add to in the light of good feedback already given by my colleagues, best of luck and let us know how you get on. MaryF

[minnime63]

Thank you everyone. I have an appointment on the 28th at King's. My doctor is also trying to refer me back to the rheumatologist so I can a) get on plaquenil and b) get referred to Guy's for an overview of everything x