ms

[pluto5]

The other day in the afternoon, I suddenly lost my memory for a few hours. Any answers to this?

[MaryF Administrator]

This is not unheard of with Hughes Syndrome/APS but a check up with your consultant would be a good idea if this is a new symptom. MaryF

[Lure2]

Hi Pluto5,

Why do you call this post MS? Do you have MS?

Are yo still on Persantin? I know you do not want warfarin. I did not either for several years but then I read "Sticky Blood Explained" by Kay Thackray. She had exactly the same symptoms from her Eye like I had. The symptoms had disapperared after she had started warfarin

After that I understood that I had to start warfarin. Warfarin has very few side-effects and are very suitable for us with APS also according to Prof Hughes. It only thins our sticky blood which has to be thinned.

Before I started warfarin I lost my memory for half an hour. I did not remember if my parents were dead. My mother had died one year earlier and my father 8 years earlier-

The second time I lost my memory for 1 hour. I did not know what occupation my daughters had. At the same time when I was without memory I could understand that I was not OK and I could speak to a friend and she did not notice anything was wrong. I did tell her this later. It was like I was living in two separate Worlds. It was very frightening.

Warfarin has been my "lifesaver". Hope you still have an APS-Specialist to talk to.

Please tell us how you get on.

Kerstin in Stockholm

[salva76]

Hi pluto i will improve with my memory problems and migrains with heparine and aspirine daily. I couldnt remember my wifes name and now i am working at my bussiness and i got my brain clear

[pluto5 in reply to salva76]

Good for you Buster! but glad things are improving for you.

[daisyd]

Morning I have brain full of holes it feels like everyone of them has a memory that has disappeared

I have Epilepsy caused I am sure due to Hughes syndrome, I no longer suffer from seizures which caused temporary memory loss, but since being on Clexane then Warfarin it has taken the fog away but some memory's are lost forever.

I have medication to control epilepy, but it's the Warfarin that has been the life saver

[pluto5 in reply to daisyd]

Just to say that my son became epileptic following having had meningitis, which was horrible in its own way, without the epilepsy. He is now on Tegretol and that keeps him clear. He hasn't had any more turns since, thank goodness.

[purple]

Hello, try looking at Transient Global Amnesia. My husband and father-in-law have both had this happen. They do not have Hughes or anything similar. They recovered completely though it lasted two days in my husbands case. Tests showed nothing untoward.