"warfarin"...: Hi, to All of you out... - Hughes Syndrome A...

Hughes Syndrome APS Forum

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"warfarin"...

popshaw21 profile image
3 Replies

Hi, to All of you out there who are suffering.., And to all those lovely ladies in Admin!!..Fab etc. And too Everyone who have sent replies, I Hope your still fighting this gruel disease?

I will be trying to get to see the neurologist who had suggested that some of the unusual symptoms I 'am feeling may be down to the Warfarin!? I'm trying to self dose myself for a certain reason and making a graft as I go, unfortunately I 'am struggling to use my computer as my sight is getting worse can someone tell me if they too are having problems with there I.N.R+ any strange side effects?.

Keep Smiling everyone.

Regards

popshaw

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popshaw21
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MaryF profile image
MaryFAdministrator

Hi when you say self dosing, do you mean managing your INR with self testing, as we can't advocate self dosing... for reasons I am sure you can imagine... thanks for lovely message.. although Dave of course is not a lady, but definitely an ADMIN!! MaryFx

Manofmendip profile image
Manofmendip in reply to MaryF

Hi and Mary is correct, no skirt wearing for me. lol.

I used to self test and self dose when I was on Warfarin, I'm now on Fragmin.

The only time I had problems on Warfarin was when my INR was too low, I never, as far as I know, had side effects from the Warfarin itself.

Do you self test?

Dave

spider7 profile image
spider7

Hi

I am on 10 of wafren and I have had some problems most of the time I am very tired and have a fuzziness in the head, my inr is all over the place. I have antiphospholipiid and a back problems. so I am also on Tramodol, morphine and gabapentin. Maybe you should ask for a brain scan just to see if everything is ok

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