Aneurysm and Warfarin: Hi all, I was... - Hughes Syndrome A...

Hughes Syndrome APS Forum

10,337 members10,533 posts

Aneurysm and Warfarin

minnime63 profile image
11 Replies

Hi all, I was diagnosed with APS in January and am on warfarin now. My INR rarely gets above 2 and I've been haranguing the blood clinic to make it higher. I still have all the symptoms I had before. Some of you may remember I posted about two "events" last month which I thought were TIAs. I was sent to the stroke referral unit, who put me through another MRI. The specialist later phoned me to say there was an irregularity in one of the arteries and that he was sending the scan for analysis. Just had a call to tell me that King's College Hospital have looked at it and found an aneurysm (incidental basilar artery aneurysm) and I have an appointment to go and see them. They are not going to do anything about it.

Well obviously I looked it up online and risks for rupture include anti-coagulation! This makes me doubt whether I can increase the warfarin doseage, or even if they'll let me stay on it. Does anyone have similar experience? What was done about it? Or do I just continue feeling like a ticking time-bomb?!

Thanks everyone x

Written by
minnime63 profile image
minnime63
To view profiles and participate in discussions please or .
Read more about...
11 Replies
Manofmendip profile image
Manofmendip

Hello

Who is managing your APS treatment?

Best wishes.

Dave

minnime63 profile image
minnime63 in reply to Manofmendip

Hi Dave, I saw a haematoligist before starting on warfarin and due to see her in May. That's it! I saw the rheumatologist once, who diagnosed me and then discharged me. Waiting for my doc to refer me back so I can start on Plaquenil.

Manofmendip profile image
Manofmendip in reply to minnime63

Where are you from?

minnime63 profile image
minnime63 in reply to Manofmendip

I'm in Cliffsend, Kent. Nearest hospitals are Margate or Canterbury.

Manofmendip profile image
Manofmendip in reply to minnime63

Thanks.

I agree entirely with what my colleague APsnotFab has advised you to do.

Dave

spider7 profile image
spider7

Hi just Wanted to ask if anyone else has had red spot apearing on the skin is it part of the syndrome, one blood spot has appeared on my face. So I am a little concerned.

My doctor said it was part of getting old.

minnime63 profile image
minnime63 in reply to spider7

I've had tiny red spots starting to appear on the lower parts of my legs. I assumed it was to do with blood flow as the circulation is very bad - purple markings, excema and varicose!

spider7 profile image
spider7 in reply to minnime63

That for your feedback

CaliforniaGail profile image
CaliforniaGail in reply to spider7

Search on our HealthUnlocked site for petechiae

MaryF profile image
MaryFAdministrator

Hi good luck with receiving more detailed advice regarding your questions, know you are armed with a little more information, which I can't add to in the light of good feedback already given by my colleagues, best of luck and let us know how you get on. MaryF

minnime63 profile image
minnime63

Thank you everyone. I have an appointment on the 28th at King's. My doctor is also trying to refer me back to the rheumatologist so I can a) get on plaquenil and b) get referred to Guy's for an overview of everything x

You may also like...

brain aneurysm surgery and warfarin

My brain aneurysm saga: As in my prior posts, I was diagnosed with a 3mm brain aneurysm in Sept....

Brain Aneurysm

I have a 3 mm aneurysm in the right ophthalmic artery leading from the carotid artery. The...

Warfarin

please bare with me. I have been on warfarin since last summer. I had a stable INR (between 2-3)...

changing to warfarin.

also cut myself quite a lot. i dont know much about warfarin and the hospital haematology doctor...

Gastroscopy and Warfarin

keep on taking Warfarin and stay within normal range. I'm concerned about staying on Warfarin in...