Dabigatran Trial: Hi all, I found out... - Hughes Syndrome A...

Hughes Syndrome APS Forum

10,392 members10,588 posts

Dabigatran Trial

MASuk10 profile image
2 Replies

Hi all,

I found out yesterday, after 18 months, that my APS is my primary condition which is good news in a way. My consultant at Northampton Hospital has recommended me for the Dabigatran trial. I'm waiting for a call from London with more information.

In the meantime is anyone here on that trial?

:-)

Written by
MASuk10 profile image
MASuk10
To view profiles and participate in discussions please or .
Read more about...
2 Replies
chrissybell profile image
chrissybell

Not on a trial, but am on dabigatran - have been since August 12. Suits me we'll (primary APS - with previous multiple PEs! Good luck (only side effect is if I take it lying down I can get really bad indigestion, so when taking night time dose (2 x a day) I have to sit up for at least 15 minutes. Other than that it doesn't interfere in my life at all! Good luck

Manofmendip profile image
Manofmendip in reply to chrissybell

That sounds good, I'm on Fragmin but I hope that one day I will be on an oral Heparin like you are.

Dave

Not what you're looking for?

You may also like...

Dabigatran approved by NICE

Hi All No doubt lots of you will be seeing information in the media about a new oral...

Pradaxa/Dabigatran

I was just wondering for all of you who are on Warfarin (I myself am on aspirin) if you have heard...

Heparin Trial

Hi, Haven't posted for a while as life has been... interesting... but have a question that I am...

Heprin Trial

My daughter (aged 21) has been ill for 7 years and variously diagnosed with Ehlers-Danlos syndrome,...

New oral anticoagulants trial

One of the questions I am most asked at the charity is when we can ditch warfarin and go onto the...