Tonight I received a worrying call from a GP who was annoyed I had never been to see her for blood tests and a consultation about my condition, primary APS. I noted I was under the care of a Rheumatologist and Neurologist, both at St Thomas's, whom I see on a six monthly basis. Additionally, I have yearly blood tests at St Thomas's. Despite this I was told I must still attend the surgery to discuss my condition with her. I note no doctor at the surgery has ever asked about my condition when I have attended for other issues. Furthermore, that this doctor is relatively new to the surgery and I was never told that she is now in charge of my file. Most worryingly I was told that very soon GPs will no longer be allowed to prescribe Clexane, which I inject on a daily basis. Apparently, our consultant will have to do this. But with my most recent appointment at St Thomas's being bumped by 7months, the week before my appointment, and so many patients being discharged from St Thomas's, is getting a script from our consultant a realistic option? My day-to-day life changed markedly after I was prescribed Clexane and I am genuinely concerned this marks a push from St Thomas's to GP care and a loss of Clexane.
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