Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,397 members • 10,602 posts

All posts for June 2013

Advice re flying

I am on warfarin and my inr is always at the higher end of my range of 3.0 - 4.0. I am doing a one hour flight in a couple of weeks and wonder if there are...

I am on warfarin and my inr is always at the higher end of my range of 3.0 - 4.0...

panda60

•11 years ago

2 Replies

Diagnosed with vasculitis

I was diagnosed with APS 17 years ago. But as time goes by I am exhibiting more symptoms. I have been hospitalized 3 times in the past 2 years . I was on...

I was diagnosed with APS 17 years ago. But as time goes by I am exhibiting more...

china22

•11 years ago

11 Replies

I am at Hosp. Just want the dr.to know what APS is and what to watch for ? Please I must get treated correctl. Thanks,kam3

kam3

•11 years ago

3 Replies

Want to take advantage of all our features? Just log in!

I am at Hosp. Just want the dr.to know what APS is and what to watch for ? Please I must get treated correctl. Thanks,kam3

kam3

•11 years ago

4 Replies

beetroot

hi all iv looked at my list and cant find out if beetroot and warfrin dont mix. doas it contain vit k?? thanks stacey. my phone wont let me see links.

hi all iv looked at my list and cant find out if beetroot and warfrin dont mix. ...

chapman

•11 years ago

4 Replies

Is Slapped Cheek Syndrome the same or related to Fifth's Disease?

My son, as a child, acquired Fifth's Disease several times between the ages of infancy till he was approximately 5 or 6. The symptoms and photo look very...

My son, as a child, acquired Fifth's Disease several times between the ages of i...

CanaryDiamond10

•11 years ago

2 Replies

INR mix up again!!...

Hi all,The last few days ive picked up a bit and have had some energy to go for a few walks with poppy,I also managed to travel to dorset where my son and...

Hi all,The last few days ive picked up a bit and have had some energy to go for ...

popshaw21

•11 years ago

8 Replies

My Husband is getting all my emails, I have tried once before to change the email to my site. Could someone please Help, I love the site .

windsorGirl

•11 years ago

2 Replies

Does anyone suffer from red "butterfly" type facial rash and Lupus has been ruled out?

I have had a red rash on both cheeks and less so on my nose....If it gets warm the rash becomes hot to the touch...began 3 months ago...I believe it was...

I have had a red rash on both cheeks and less so on my nose....If it gets warm t...

Hidden

•11 years ago

11 Replies

letter received today

Was discharged from lupus unit in Feb.was not happy, consultant disagreed with everything Prof.D,Cruz had said previously and I knew that I would ask to see...

Was discharged from lupus unit in Feb.was not happy, consultant disagreed with e...

donnabrain

•11 years ago

18 Replies

Hughes meeting 2013!

Hi yep I've only just got around to putting a photo up from the meeting this year of some of us that met up!! it was great to see some of you there & hope to...

Hi yep I've only just got around to putting a photo up from the meeting this yea...

Suzypawz

•11 years ago

5 Replies

I have Hughes. I'm not under a specialist, could someone suggest a good specialist for Hughes syndrome? I live in London.

madmaz

•11 years ago

10 Replies

Help please, What do I ask my GP now?

Immunology/APS tests are now back and I just got a message left for me at reception saying all normal, no appointment, nothing!, GP should be ringing me this...

Immunology/APS tests are now back and I just got a message left for me at recept...

PepperT

•11 years ago

20 Replies

Has anyone experienced a burst blood vessel in the eye while on Coumadin?

Willa

•11 years ago

5 Replies

Hola!

Just a quick blog to say I'm thinking of you all xxx

InSpain

•11 years ago

12 Replies

Warfarin and Vitamin D

As some know, my Husband has Primary APS. Apart from a DVT, because of a switched on Dr, he has lived a very happy, healthy life on Warfarin. This included...

As some know, my Husband has Primary APS. Apart from a DVT, because of a switch...

Tiggercat

•11 years ago

13 Replies

When to have bone density scans?

I have had 2 bone density scans both ordered by NHS consultants. On the last one which about 6 years ago I was borderline. Anybody know when I have a right...

I have had 2 bone density scans both ordered by NHS consultants. On the last on...

Jade

•11 years ago

5 Replies

Jobs worth GP strikes again, I'm so mad

I mad again on behalf of my adult son. I have written before about his useless jobs worth GP. The last thing was giving him exactly 30 heparin to tide him...

I mad again on behalf of my adult son. I have written before about his useless ...

Jade

•11 years ago

4 Replies

Can you have vein surgery on your veins if you have lupis anticoagulant and are on warfarin.

I am 36 and have been diagnosed with L.A..none of the doctors were i live are familiar with this disorder. I do not have insurance therefore doctors just pass...

I am 36 and have been diagnosed with L.A..none of the doctors were i live are fa...

needhelpwlupisA

•11 years ago

5 Replies

Why is there momentary pain behtind the ear on the left hemisphere?

madappokhrel

•11 years ago

4 Replies

MedlinePlus: Update Shingles Virus Vaccine in The States

This is a concise video updating the current status of the Shingles Virus & Vaccine in the States. I hope it will inform the patients to how to recognize it...

This is a concise video updating the current status of the Shingles Virus & Vacc...

CanaryDiamond10

•11 years ago

2 Replies

Is anyone else scared out of their minds? I am scared, and my doctors have not even told me a part of what I have learned on this site.

Hidden

•11 years ago

15 Replies

What are all these blood tests for ?

Hi all, wondered if anyone can help as some of U already know I have had multiple miscarriages and my last one was 12 days ago so I decided to get a second...

Hi all, wondered if anyone can help as some of U already know I have had multipl...

lisarig

•11 years ago

4 Replies

APS & Varicose Vein treatment

was diagnosed with APS last year following a PE, am now on life long warfarin. I have a varicose vein that i would like treated, however not sure where i...

was diagnosed with APS last year following a PE, am now on life long warfarin. I...

bonus

•11 years ago

3 Replies

A short article From The Daily Mail

http://www.dailymail.co.uk/health/article-2339263/Fobbed-doctor-Now-second-opinion-expert-just-phone-away.html Mary Fx

http://www.dailymail.co.uk/health/article-2339263/Fobbed-doctor-Now-second-opini...

MaryF

Administrator•11 years ago

43 Replies

Is APS causing this or is it a coincidence?

I have been tested and am waiting for blood tests results for aps to come back but I felt so unwell that I started taking a junior aspirin everyday - brain fog...

I have been tested and am waiting for blood tests results for aps to come back b...

PepperT

•11 years ago

6 Replies

are we considered disabled

just wondering are people with aps on the disability list or do you need to go to your doctor to be assessed ty mcbeth

just wondering are people with aps on the disability list or do you need to go t...

mcbeth

•11 years ago

10 Replies

Study of celiac and Blood disorders

Here is the llink to an interesting article summarizing evidence of a link between celiac and blood diseases:...

Here is the llink to an interesting article summarizing evidence of a link betwe...

GinaD

•11 years ago

7 Replies

Haematology appointment

Hi, I finally have an appointment with a haematologist and I'm worried that he will be one of those doctors who don't recognise APS as a condition. What is the...

Hi, I finally have an appointment with a haematologist and I'm worried that he w...

vine55

•11 years ago

6 Replies

Tooth Abstraction in hospital last Thursday

I had a tooth out because I am on 9mg of Warfarin at a hospital. I had a room to myself with my friend who was there for support. It was in a private hospital...

I had a tooth out because I am on 9mg of Warfarin at a hospital. I had a room to...

Hidden

•11 years ago

11 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for June 2013

Advice re flying

Diagnosed with vasculitis

I am at Hosp. Just want the dr.to know what APS is and what to watch for ? Please I must get treated correctl. Thanks,kam3

I am at Hosp. Just want the dr.to know what APS is and what to watch for ? Please I must get treated correctl. Thanks,kam3

beetroot

Is Slapped Cheek Syndrome the same or related to Fifth's Disease?

INR mix up again!!...

My Husband is getting all my emails, I have tried once before to change the email to my site. Could someone please Help, I love the site .

Does anyone suffer from red "butterfly" type facial rash and Lupus has been ruled out?

letter received today

Hughes meeting 2013!

I have Hughes. I'm not under a specialist, could someone suggest a good specialist for Hughes syndrome? I live in London.

Help please, What do I ask my GP now?

Has anyone experienced a burst blood vessel in the eye while on Coumadin?

Hola!

Warfarin and Vitamin D

When to have bone density scans?

Jobs worth GP strikes again, I'm so mad

Can you have vein surgery on your veins if you have lupis anticoagulant and are on warfarin.

Why is there momentary pain behtind the ear on the left hemisphere?

MedlinePlus: Update Shingles Virus Vaccine in The States

Is anyone else scared out of their minds? I am scared, and my doctors have not even told me a part of what I have learned on this site.

What are all these blood tests for ?

APS & Varicose Vein treatment

A short article From The Daily Mail

Is APS causing this or is it a coincidence?

are we considered disabled

Study of celiac and Blood disorders

Haematology appointment

Tooth Abstraction in hospital last Thursday

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