Hi yep I've only just got around to putting a photo up from the meeting this year of some of us that met up!! it was great to see some of you there & hope to meet more of you next year
Hughes meeting 2013!: Hi yep I've only... - Hughes Syndrome A...
Hughes meeting 2013!


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Suzypawz
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5 Replies
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Who's who Suzy, nice to put a face to a forum name?
Well I'm the 2nd from the left....the rest will have to name themselves incase they want to stay unknown.......
Hi Suzy
great to see you there at the Patients' Day. It is three years now, since I flew over to see Pof Hughes, and enjoyed attending that Day, and saw so many of you that I'd been emailing to, who helped me with ideas to get to London
Yes it was lovely to meet you hunny.....hope to see you again x
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