Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,397 members • 10,602 posts

All posts for June 2013

HELLO EVERYBODY - I'M AWAKE FROM THE BIG SLEEP!!!!!

Hello! Can't write too much as my focus is not too good. But thank you all for your good wishes! I woke up this morning. I feel like I've had too many gin...

Hello! Can't write too much as my focus is not too good. But thank you all for...

InSpain

•11 years ago

35 Replies

Lyme disease?????

I know this is not related to my APS, but does anybody know about Lyme disease or a consultant in the UK pref NHS , my son has hypothyroidism-first thought of...

I know this is not related to my APS, but does anybody know about Lyme disease ...

traceylou

•11 years ago

21 Replies

I have a question about what causes a banding squeezing sensation around abdomen and left side ribs...like a rope is around me.

dk66343

•11 years ago

16 Replies

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sleep apnea

Hi Can any tell me if sleep apnea is part of Hughes Syndrome? At the moment I am being tested for this as I have been wearing a monitor last night whilst...

Hi Can any tell me if sleep apnea is part of Hughes Syndrome? At the momen...

Stannington-lad

•11 years ago

8 Replies

A Catastrophic Event

I have put the latest post up on my Blog. It is what transpired following my husband's surgery, all the "things" that happened before, and after he was...

I have put the latest post up on my Blog. It is what transpired following my hu...

Tiggercat

•11 years ago

3 Replies

Losing limbs

Hi all I lost my left leg below the knee 7 years ago due to micro clots in my muscles which caused a disease seen in trauma cases called compartment...

Hi all I lost my left leg below the knee 7 years ago due to micro clots in my...

Dann

•11 years ago

6 Replies

Anyone else feel like they are being pulled from pillar to post ?

Hi all Well I'm six months in since my first consultation with the consultant at guys and I'm getting more and more disheartened as time goes on so far I...

Hi all Well I'm six months in since my first consultation with the consultan...

Dann

•11 years ago

5 Replies

Phenindione out of stock again

Hi there just wondered if any one else was having difficulty getting their monthly prescription of phenindione. My chemist have no idea when stock is due...

Hi there just wondered if any one else was having difficulty getting their month...

tiredmum

•11 years ago

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my story

hi, im Stephanie. if you have been diagnosed with a potentially life-threatening condition than you will understand what i am trying to say. last year,...

hi, im Stephanie. if you have been diagnosed with a potentially life-threaten...

steph95

•11 years ago

9 Replies

Having a torrid couple of weeks....

These last few weeks have been frustating and painful,firstly i had a fall in the middle of the night going to the toilet which has left me in a lot of pain...

These last few weeks have been frustating and painful,firstly i had a fall in th...

popshaw21

•11 years ago

5 Replies

How do you explain APS to others?

Hi I have trouble explain APS to people ... I think I end up confusing them and myself. Just wanting to know how you explain it to others? Thanks Wendy

Hi I have trouble explain APS to people ... I think I end up confusing them and...

Wenz15

•11 years ago

7 Replies

A&E

Well last night I ended up in Bath hospital... Have been feeling good the last couple of days and randomly yesterday there was a knock at the door. It was one...

Well last night I ended up in Bath hospital... Have been feeling good the last c...

Charli84

•11 years ago

9 Replies

Thyroid??

Please could anyone help me???? I was wondering if anybody could advise me on how to have my thyroid thoroughly tested, what tests etc?? I am convinced I have...

Please could anyone help me???? I was wondering if anybody could advise me on ho...

traceylou

•11 years ago

1 Reply

Meetup in yorkshire?

Hi everybody,just wondered if anyone would be interested in meeting up somewhere in yorkshire.I I already meet with someone in Bridlington, but a few more...

Hi everybody,just wondered if anyone would be interested in meeting up somewhere...

Elfie1

•11 years ago

11 Replies

Been to the doctors but she missed the point. Anyone?

Hey all! I was diagnosed with Hughes last year, because of my three miscarriages I have been having increased symptoms like memory loss, tingle sensations,...

Hey all! I was diagnosed with Hughes last year, because of my three miscarriages...

xxkellywxx

•11 years ago

9 Replies

is there anywhere that we can see that aps is under the disability at work act need to have it so that can give to my work it ty

noodlesrita123

•11 years ago

5 Replies

Taking a flight

Hi guys, just wanted some advice. I have APS which I manage with daily ASPRIN, I am going away at the end of the month and Read about the dangers of blood...

Hi guys, just wanted some advice. I have APS which I manage with daily ASPRIN, ...

apsgirl

•11 years ago

7 Replies

UPDATE ...InSpain

Today I am using Google Translate so I hope it works OK! InSpain has now been moved into intensive care, because she needs to be kept away from infection, and...

Today I am using Google Translate so I hope it works OK! InSpain has now been m...

InSpain

•11 years ago

10 Replies

Really struggling .......

Hi all - i usually handle things ok,and as long as the pain stays on a level then im generally ok,however after the last lapse im really not getting back on...

Hi all - i usually handle things ok,and as long as the pain stays on a level the...

emmaj

•11 years ago

13 Replies

Prof Graham Hughes' blog May 2013

'The coldest spring in fifty years?’ Anyway, whatever this month's record was, it was certainly unseasonable. And it seems to have been unseasonable over much...

'The coldest spring in fifty years?’ Anyway, whatever this month's record was, ...

Hidden

•11 years ago

4 Replies

low grade fever in APS?

Hi, One question about low grade fever. At the moment, I have only primary APS. Appart from having pain, tiredness, brain fog, etc...I usually present low...

Hi, One question about low grade fever. At the moment, I have only primary APS....

swirl

•11 years ago

5 Replies

any one else get this?

sometimes my upper eyelids swell so much that they bury my lower lid and half my eyes,this is not painfull or anything, just makes me look weird, its just that...

sometimes my upper eyelids swell so much that they bury my lower lid and half my...

donnabrain

•11 years ago

7 Replies

I was wondering if anyone else was having joint pain due to Hughes Syndrome? I have so much pain that they are finding it hard to control.

Hidden

•11 years ago

20 Replies

This might be worth a try if you have problems with your sight.

My neighbour was recently diagnosed with a serious eye condition that could leave her blind. She had limited vision so she's awaiting to see a specialist, as...

My neighbour was recently diagnosed with a serious eye condition that could leav...

Jillymo

•11 years ago

2 Replies

Linseed oil capsules/ seeds

A friend of mine who also has severe arthritis told me the other day that she swears that taking Linseed oil capsules has changed her life,and she had passed...

A friend of mine who also has severe arthritis told me the other day that she sw...

Hidden

•11 years ago

7 Replies

Inspiration - free!

Hi All Have you heard of TED talks ( www.TED.com )? I have been addicted now for about two years and I thought I would share links with some of the...

Hi All Have you heard of TED talks ( www.TED.com )? I have been addicted...

Hidden

•11 years ago

1 Reply

InSpain

I speek to you all for my bootifal frend InSpain. Today she have very much transfushun. Normal is 4/6 bags she have 14. She now sleep with medicación. She...

I speek to you all for my bootifal frend InSpain. Today she have very much tran...

InSpain

•11 years ago

8 Replies

Bit worried about my INR level is 5.8 What does that mean?

They have taken a blood sample sending off to lab. I was really unwell yesterday, slurring, high temperature,hot, sweating, balance and Co ordination was out,...

They have taken a blood sample sending off to lab. I was really unwell yesterday...

Tonkawoman69

•11 years ago

12 Replies

Hi folks I'm still waiting for my appointment with Rheumy in July but

recently went to Dr's again and she put me on low dose Amitriptyline. I have to say I feel a lot better especially regarding the pains all over, but I'm afraid...

recently went to Dr's again and she put me on low dose Amitriptyline. I have to ...

Everdean

•11 years ago

9 Replies

Could be sacked today

As previous blog which I couldn't find. Today is the day go all my info so jut see what happens. What will be will be and will fight all the way thanks for...

As previous blog which I couldn't find. Today is the day go all my info so jut s...

noodlesrita123

•11 years ago

9 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for June 2013

HELLO EVERYBODY - I'M AWAKE FROM THE BIG SLEEP!!!!!

Lyme disease?????

I have a question about what causes a banding squeezing sensation around abdomen and left side ribs...like a rope is around me.

sleep apnea

A Catastrophic Event

Losing limbs

Anyone else feel like they are being pulled from pillar to post ?

Phenindione out of stock again

my story

Having a torrid couple of weeks....

How do you explain APS to others?

A&E

Thyroid??

Meetup in yorkshire?

Been to the doctors but she missed the point. Anyone?

is there anywhere that we can see that aps is under the disability at work act need to have it so that can give to my work it ty

Taking a flight

UPDATE ...InSpain

Really struggling .......

Prof Graham Hughes' blog May 2013

low grade fever in APS?

any one else get this?

I was wondering if anyone else was having joint pain due to Hughes Syndrome? I have so much pain that they are finding it hard to control.

This might be worth a try if you have problems with your sight.

Linseed oil capsules/ seeds

Inspiration - free!

InSpain

Bit worried about my INR level is 5.8 What does that mean?

Hi folks I'm still waiting for my appointment with Rheumy in July but

Could be sacked today

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