Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,392 members • 10,588 posts

All posts for June 2013

New Book: Hughes Syndrome: Highways and Byways

Is it true that this book by Dr G. Hughes and Munther A. Khamashtra is only 75 pages long? It costs £35.99 on Amazon and is not published until 31 July...

Is it true that this book by Dr G. Hughes and Munther A. Khamashtra is only 75 p...

•11 years ago

speech problems

Does anyone has speech problems sometimes? I find that when I am really having an APS day I find myself tripping over my words and find it hard to talk .......

Does anyone has speech problems sometimes? I find that when I am really having a...

•11 years ago

The journey has begun..........

Love to you all xxx

Love to you all xxx

•11 years ago

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Does anyone have a normal blood test but a abnormally functioning thyroid? Like low thyroid function?

I have Hughes but I think that my thyroid is not functioning right. I have family history, fatigue, dry skin, weight gain, swollen legs-feet, and I blood...

I have Hughes but I think that my thyroid is not functioning right. I have famil...

•11 years ago

Rivaroxaban

Hi I have been diagnosed with Hughes and been taken off warfarin due to unstable INR, I am due to start on Rivaroxaban and wondered whether anyone has been on...

Hi I have been diagnosed with Hughes and been taken off warfarin due to unstable...

•11 years ago

Sorry -- though this is the group that understands mental spaciness

I have lost the link to the audio recording of Patients Day. And this morning is when I had time to listen (oh well.) Please indulge me with a link reminder...

I have lost the link to the audio recording of Patients Day. And this morning i...

•11 years ago

Anyone diagnosed with aps but no clotting

Anyone here diagnosed with aps but no clotting? What are you doing for treatment and how long ago were you diagnosed? Thanks and hope you all have a great...

Anyone here diagnosed with aps but no clotting? What are you doing for treatmen...

•11 years ago

Thought of the Day and on the wish list too!

It is such a shame that time and time again we have to educate our doctors about our condition, rather than them thinking hmmm I have a patient with a...

It is such a shame that time and time again we have to educate our doctors about...

•11 years ago

Plaquenil

Hi everyone. Ive read on this site that many of you are on plaquenil and as i have problems with tierdness brain fog etc I thought i would ask my gp about...

Hi everyone. Ive read on this site that many of you are on plaquenil and as i ...

•11 years ago

AN UPDATE FROM HERE InSpain...

Hi Everybody Firstly, I must apologise for not writing for such a long time. I am very seriously ill at the moment. Secondly, sorry folks this is a very...

Hi Everybody Firstly, I must apologise for not writing for such a long time. I...

•11 years ago

Hi I am new to Hughes Syndrome. I can't take Warfarin so I take 162mg of aspirin. Is anyone else treated with just aspirin?

•11 years ago

Does anyone know the significance of raised Anti Nuclear Antibodies? (ANA)

Have seen Prof. D'Cruz and despite having raised anticardiolipin antibodies 15 years ago following recurrent miscarriage, levels are now negative, although ANA...

Have seen Prof. D'Cruz and despite having raised anticardiolipin antibodies 15 y...

•11 years ago

I only want to thank you

I`m writting these words only to thank you for uploading here the audio from the Patient´s Day. I am Spanish and live in Spain. I can´t find APS groups...

I`m writting these words only to thank you for uploading here the audio from the...

•11 years ago

Another miscarriage even after treatment

I'm just going through my 6th consecutive loss in 18 months I have had one positive lupus anticoagulant test and have been started on 75mg and clexane 40mg...

I'm just going through my 6th consecutive loss in 18 months I have had one posit...

•11 years ago

HELLO!

Hi everyone, My name is Maria. I just need a litte bit of hope. To start, I was diagnosed with APS in 2009 after my second miscarriage. Since then my life has...

Hi everyone, My name is Maria. I just need a litte bit of hope. To start, I was...

•11 years ago

My INR IS 1.7!!!! HELP! I've been on coumadin it for 13 years. Thoughts? They upped it and I will recheck in 2 weeks.HELP!

I've been on it for 13 years. Any ideas why it could tank for 2 blood draws? 6 weeks or so. I'm worried a little. can you become resistant?

I've been on it for 13 years. Any ideas why it could tank for 2 blood draws? 6 w...

•11 years ago

My reading challenge

I am going to have go at reading War and Peace again 45yrs on from when I read it in 1968 when I was supposed to be studying for my O Levels! I have the audio...

I am going to have go at reading War and Peace again 45yrs on from when I read i...

•11 years ago

moving forward

well all it's been 2 weeks since i lost Mary -- it's been a hard road to walk- being evicted hasn't helped matters any. my inr's are all over the place- sugar...

well all it's been 2 weeks since i lost Mary -- it's been a hard road to walk- b...

•11 years ago

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