Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,361 members • 10,549 posts

All posts for August 2012

The Great Big Small Charity Car draw

For the second year running, the Hughes Syndrome Foundation (HSF) will be part of the FSI's Great Big Small Charity Car Draw. The draw enables charities, such...

For the second year running, the Hughes Syndrome Foundation (HSF) will be part o...

Hidden

•12 years ago

2 Replies

Please help with my warfarin yo yo!

I have now been on warfarin since last June, inr increased to a range of 3-4. I do not understand why it is that no sooner I am in range, I plummit regulary,...

I have now been on warfarin since last June, inr increased to a range of 3-4. I...

traceylou

•12 years ago

4 Replies

Please help

Hi about 4 months ago I passed out ever since I have been feeling a bit funny in the head like lightheadiness and it's all day every day . I had a MRI/mra...

Hi about 4 months ago I passed out ever since I have been feeling a bit funny in...

Moonbug

•12 years ago

9 Replies

Want to take advantage of all our features? Just log in!

List of any and all medicines

I would suggest that everyone list the medicines and supplements they take. Many can lead to similar symptoms of APS, such as statins and some of us might be...

I would suggest that everyone list the medicines and supplements they take. Man...

Hidden

•12 years ago

12 Replies

fundraising

I am intending to hold a fundraising arts exhibition at my home. Is there a charity number I should be using for possible reduced rate advertising and also do...

I am intending to hold a fundraising arts exhibition at my home. Is there a char...

Stella

•12 years ago

5 Replies

log in problems

I have a lot of problems using a keyboard, is it possible to have just a username to log in with rather than the full e-mail address plus password? I have a...

I have a lot of problems using a keyboard, is it possible to have just a usernam...

Stella

•12 years ago

1 Reply

FAMILY TESTING

Just wondered ?? I just carried out hospital survey and one of the questions was had I been advised to have family members tested my answer was no. But...

Just wondered ?? I just carried out hospital survey and one of the questions ...

thegaul

•12 years ago

5 Replies

Problems with Health Diaries

I have many times tried to complete a daily health diary However this seems almost impossible for me ! When I go to fill it in I often have such a long list...

I have many times tried to complete a daily health diary However this seems a...

thegaul

•12 years ago

3 Replies

Update on abcess

Well, further to my last blog my abcess got worse and worse and was feeling very unwell. So on Friday had to have it surgically sorted. Thankfully they...

Well, further to my last blog my abcess got worse and worse and was feeling very...

judes

•12 years ago

4 Replies

This runs out in a few days and it needs help to reach 1000 signatures

Hi there Lots of people are signing this petition now AND passing it via email and facebook to help it reach it's target. I have some great...

Hi there Lots of people are signing this petition now AND passing it via ...

MaryF

Administrator•12 years ago

8 Replies

My son (44) coping with H.S.

It is my son that has Hughes Syndrome, I do this on his behalf. He has been diagnosed as having peripheral edema, could this be due to his blood levels being...

It is my son that has Hughes Syndrome, I do this on his behalf. He has been diag...

Medsil

•12 years ago

4 Replies

Questions

Hi everyone, can you give me some ideas on what questions i need to ask my obgyn when i go in a couple of weeks. I want to be prepared and need to know what...

Hi everyone, can you give me some ideas on what questions i need to ask my obgyn...

katrinahug03

•12 years ago

10 Replies

Please help!!

Hi guys, I've only just joined after being diagnosed with APS in April 2010 after having 2 miscarriages and 1 stillbirth. Until now it's has only affected me...

Hi guys, I've only just joined after being diagnosed with APS in April 2010 afte...

Gemgem

•12 years ago

9 Replies

Exhausted, exhausted, exhausted . . . I'm

so tired of it. I'm taking Plaqunil but it doesn't seem to help. Anyone have any other ideas? We are going to Disneyland in October and I'm going to need...

so tired of it. I'm taking Plaqunil but it doesn't seem to help. Anyone have a...

jean48

•12 years ago

22 Replies

Extreme tiredness, low ferritin - both myself and daughter

Well I could not believe it when the hospital in London said that both of our levels are very low hence why I fall asleep so suddenly and my daughter saying...

Well I could not believe it when the hospital in London said that both of our le...

daisy11

•12 years ago

3 Replies

Have any of you been diagnosed with Mitral Value problems since APS diagnosed? My mitral value is failing albet slowly.

77tiger05

•12 years ago

5 Replies

Update on 'ATOS'

Current article: http://www.guardian.co.uk/society/2012/aug/02/atos-disability-benefit-tests Mary F

Current article: http://www.guardian.co.uk/society/2012/aug/02/atos-disabilit...

MaryF

Administrator•12 years ago

4 Replies

Eye Problems

Because of the TIA's I have my eyes tested once a year. At a recent test I told the optician that I sometimes see bright electric blue dots mainly in the...

Because of the TIA's I have my eyes tested once a year. At a recent test I told...

anje

•12 years ago

7 Replies

Low Blood Platelets with Hughes Syndrome?

I just wanted to ask has anyone else got Hughes S. and suddenly got lowered platelets? I,ve got this now, and the g.p. says they will just do odd blood tests...

I just wanted to ask has anyone else got Hughes S. and suddenly got lowered plat...

top_hole

•12 years ago

5 Replies

Is Sporty1 still interested in similar-minded contacts?

Hi, Sporty1, and everyone. I am new here, so I greet you all, and thank you for your concern about the reliability of information shared, for others who...

Hi, Sporty1, and everyone. I am new here, so I greet you all, and thank you fo...

sporty2

•12 years ago

1 Reply

Is it dangerous to take antidepressants or anxiolytics for those who have HS?

ASilva

•12 years ago

5 Replies

IVIG and Plasmapheresis

Is there anyone that does IVIG or Plasmapheresis for treatment on a regular basis? if so why are you?

Is there anyone that does IVIG or Plasmapheresis for treatment on a regular basi...

Skyllark

•12 years ago

8 Replies

The last five weeks have been a little hairy but it is not all bad news.

A few weeks back, I was started on a very very low dose trial of 'Plaquenil'. i was full of hope about this...as my young daughter is doing better than she...

A few weeks back, I was started on a very very low dose trial of 'Plaquenil'. i...

MaryF

Administrator•12 years ago

38 Replies

Hoping for answers!

Having been off work since January and then having stroke like symptoms at the end of April but no diagnosis of what the problem is, I finally have a neurology...

Having been off work since January and then having stroke like symptoms at the e...

janekins

•12 years ago

3 Replies

DLA Tribunal

Well yesterday was D day, after seven months of being refused my renewal (I was getting middle rate care) I finally was getting my chance to tell people how my...

Well yesterday was D day, after seven months of being refused my renewal (I was ...

TJSTICKYBLOOD

•12 years ago

11 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for August 2012

The Great Big Small Charity Car draw

Please help with my warfarin yo yo!

Please help

List of any and all medicines

fundraising

log in problems

FAMILY TESTING

Problems with Health Diaries

Update on abcess

This runs out in a few days and it needs help to reach 1000 signatures

My son (44) coping with H.S.

Questions

Please help!!

Exhausted, exhausted, exhausted . . . I'm

Extreme tiredness, low ferritin - both myself and daughter

Have any of you been diagnosed with Mitral Value problems since APS diagnosed? My mitral value is failing albet slowly.

Update on 'ATOS'

Eye Problems

Low Blood Platelets with Hughes Syndrome?

Is Sporty1 still interested in similar-minded contacts?

Is it dangerous to take antidepressants or anxiolytics for those who have HS?

IVIG and Plasmapheresis

The last five weeks have been a little hairy but it is not all bad news.

Hoping for answers!

DLA Tribunal

Search posts

Pinned Posts

Latest poll

Out of Hours GP provision - how has your's served you in an emergency?

Topics

Archive