Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,365 members10,561 posts

All posts for August 2012

How long does it take you to get moving in the morning when you wake up?

My doc asked me this which I had never really put any thought to it before, I gu...
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APS and strokes

Just wondering how many of us have had it confirmed that they have suffered from...
traceylou profile image

We do NOT have APS. We have AUTOIMMUNITY!

I've been seeing a number of posts lately regarding unfortunate experiences with...
TheKid profile image
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St Thomas's referral

I'm off up to London tomorrow for my referral with Prof Hunt. Its the first time...
janekins profile image

Sooo........ Did you know the only problem APS/Hughes causes is clots?!?!?

Yep.... That is precisely what I was told by a new doc I saw today when we were ...
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Suffering with a.p.s. and crying with exhaustion.

i have a.p.s. and several other related health problems, but briefly can any one...
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Livedo Rash?

How many of us has this rash? I have it extensively on my arms and face and trun...
traceylou profile image

Silly me

Hi im new to all this I only got told 3 weeks ago I have ApS, so bare with me pl...
clumsy3 profile image

How does exercise affect your hip pain?

It seems that most of us with APS have hip pain problems when our INR is not rig...
iwantsimple profile image

it's me

Jet here -sorry that i havn't to active--- lot's on my plate- many uncontroled ...
jetjetjet profile image

Interesting article:

http://www.independent.co.uk/news/uk/home-news/disabled-woman-took-on-welfare-sy...
MaryF profile image
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Is it APS or MS or both?

HELP! I wander if any of you have had a similar experience. I was diagnosed wit...
mitzygaynor profile image

struggling with my memory

Really struggling with my memory again. I have put a notebook on my kitchen tab...
panda60 profile image

can I come off anti-epileptic medication have been diagnosed with Hughes syndrome and I have not had a seizure since been on warfarin ?

muzza profile image

Fragmin

Hi all I've been put on Fragmin today it doesnt say when to take it can you do a...
Moonbug profile image

Update on Rivaroxiban

Some of you may know that following a large DVT in my thigh last year I was put ...
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Pain meds

When taking medication for pain, are pill forms of meds less effective for you, ...
Skyllark profile image

Is it okay to alternate 2.5 mg and 3.0 mg of Warfarin every other day?

I've read that we need to be very careful about decreasing dosages, but my doc w...
iwantsimple profile image

ESA

Just had phone call from ATOS to arrange medical, the woman says you carnt atten...
sharonap profile image

Have you participated in the Exercise & APS survey?

https://survey.kent.ac.uk/exerciseandaps Karen is an APS patient as well as ...
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Making a change to testing after 1 miscarriage rather than having to wait for 3 losses before we are taking seriously!

Hi there guys, in the UK we currently have to go through 3 losses before we are ...
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Preparation for appointment at St Thomas's

Hi all I have just received my appointment with Prof Hunt's team and wondered i...
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Bleed into knee - anyone else had this??

Further to the question I asked on the 25/07/12 regarding knee pain. Know what ...
MaryH profile image

Are there any restrictions or concerns with exercising with APS?

I finally received a diagnosis 2 months ago, and now that I'm on Coumadin, I fee...
iwantsimple profile image

Struggling to remember appointments

Hi my memory is getting worse to the point its effecting my work and getting to ...
KarenOR profile image

Hi guys could someone tell me the main centre hospitals that deal with APS? I'd like to pass the info to my gp whom I will be seeing soon.

TreyBon64 profile image

Buzzing headaches that occur in waves

Has anyone else had headaches that hit suddenly, intensely, and literally stop y...

Please take the time to do the Prescription Charges survey - for UK only members, sorry!

The Hughes Syndrome Foundation is a member of the Prescription Charges Coalition...
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Tia attacks

Hi all was just wondering if you was getting lots of Tia attacks would it make a...
Moonbug profile image

Two APS Patients Being Good Friends? The world isn't ready!

The world isn't ready for me and Jet to be buddies but I have to tell you its re...
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