Having been off work since January and then having stroke like symptoms at the end of April but no diagnosis of what the problem is, I finally have a neurology appointment on Thursday. I just want some answers as to what is happening in my head as the MRI scan showed nothing! And if he says a migraine I will not believe him, cos I have not got any symptoms of a migraine!!
I'm also into my 3rd week of taking plaquenil liquid. 1st 2 weeks I had to take one dose (8mls)a day. I even noticed at the end of that 2nd week that my joint pains were already noticeably better so I was really pleased. Then the 3rd week I had to double the dose. Don't know why but on the 2nd day my joints were terrible, particularly my ankles, knees and left wrist and have been bad every day since then. I've also found it difficult to sleep, only getting between
4 and 6 hours a night. Before I was having to sleep in the afternoons too as I was so tired. Anyone else experienced this?
I'm looking forward to going up to London on 16 August for my referral with Professor Hunt who I saw 20 years when I was pregnant with my daughter. I'm hoping that she will have some answers for me so that I can make the decision of whether to take early retirement or to try and work a bit longer.
Will let you know how the appointments go.
Hope you all have a good day today