Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,368 members • 10,563 posts

All posts for August 2012

Anybody suffer from alopecia?

Hi ! A new step on my way....now alopecia. My hair is falling since I take sintrom (more than a year ago). More and more everyday. Fortunately, my head was...

Hi ! A new step on my way....now alopecia. My hair is falling since I take sint...

swirl

•12 years ago

10 Replies

Sorry one more question about the fragmin :)

Hi guys im so sorry with all these questions about fragmin :) but where from the belly button do you inject I've been going quite far down and I've been told...

Hi guys im so sorry with all these questions about fragmin :) but where from the...

Moonbug

•12 years ago

5 Replies

INR the ups and downs

Well, I've had my venus INR result and I nearly passed out with the answer. My INR finger prick test was 4.6 ... I went for the venus test and the result was...

Well, I've had my venus INR result and I nearly passed out with the answer. My...

TreyBon64

•12 years ago

13 Replies

Want to take advantage of all our features? Just log in!

What's your area ? !!!

I'd really love to know that I'm not the only one in my area (Runcorn, Cheshire, UK) that has this condition. So I'm putting a request out for anyone in my...

I'd really love to know that I'm not the only one in my area (Runcorn, Cheshire,...

TreyBon64

•12 years ago

31 Replies

Tired?

Iam so tired today my body and brian will not work. I know its because I went shopping with my daughter in Liverpool yesterday but wonder if anybody takes...

Iam so tired today my body and brian will not work. I know its because I went sh...

sharonap

•12 years ago

7 Replies

Hitting a vein with fragmin injection

Hi last night I hit a vein with the injection has any one else done this and is it ok i got a massive bruise so was worried . Many thanks in advance xx

Hi last night I hit a vein with the injection has any one else done this and is ...

Moonbug

•12 years ago

10 Replies

Morning.rollercoaster inr :(

Morning ev one hope every one is ok well as ok can be. I still on a roller coaster with my blood it to thick now :( so injecting myself daily with clexane :(...

Morning ev one hope every one is ok well as ok can be. I still on a roller coa...

jo77

•12 years ago

9 Replies

Helping push petitions along.

Hello, these two petition are regarding thryoid. Many people find the diagnosis of their thyroid issues a nightmare and a long process, (not everybody), but...

Hello, these two petition are regarding thryoid. Many people find the diagnosis...

MaryF

Administrator•12 years ago

6 Replies

Insertion in APS ACTION

Hey guys, long time no see.. I must share this with you. My doctor made me the first Brazilian patient to be included in the APS ACTION programme. I was...

Hey guys, long time no see.. I must share this with you. My doctor made me the f...

BrazilianBade

•12 years ago

13 Replies

heat type feeling in head - some days

hELLO, DOES ANYONE ELSE GET A FEELING OF HEAT IN THEIR HEAD? did explain to Haematologist in London. Also get goosbumps whatever the weather. I find that...

hELLO, DOES ANYONE ELSE GET A FEELING OF HEAT IN THEIR HEAD? did explain to Ha...

daisy11

•12 years ago

6 Replies

thanks for messages of support

Thanks to everyone for their messages of support over my memory problems. Taking things slowly, but still having too many blips. Has it's funny side though -...

Thanks to everyone for their messages of support over my memory problems. Taking...

panda60

•12 years ago

5 Replies

I've written many blogs, because I have many questions! here's another. Can anybody please interpret this for me?

"Anne is a 37 yr old female who presented with acute right leg ischemia...... Antiphospholipid antibody tests have been conducted... This is consistent with...

"Anne is a 37 yr old female who presented with acute right leg ischemia...... A...

anniesensi

•12 years ago

5 Replies

The height of Irony? ATOS sponsoring Paralympics...........

I saw this article in today's Ecclesia news and didn't know whether to laugh or cry........ http://www.ekklesia.co.uk/node/16939

I saw this article in today's Ecclesia news and didn't know whether to laugh or ...

Welshexile

•12 years ago

2 Replies

ESA medical

Oh dear, was told by the DWP that I had to have a representative go with me to my appeal medical. So I worked hard to get myself a welfare officer (not so easy...

Oh dear, was told by the DWP that I had to have a representative go with me to m...

Rhian21

•12 years ago

7 Replies

Mary F Is that picture Mrs Slokem???? From R U Being Served??

I watch that show on Public Television in the (USA) and find it to be very funny, (I must rush home and tend to my ,,,er umm Kitty LOL.. I love Mr Granger,...

I watch that show on Public Television in the (USA) and find it to be very funny...

Dangerousdoug2

•12 years ago

5 Replies

Questions and comments advice needed

Hello My Brother (older) has Hughes and APS. He is approximately 52 It has caused strokes, seizures, Black holes in his field of vision,...

Hello My Brother (older) has Hughes and APS. He is approximately 52 ...

Dangerousdoug2

•12 years ago

5 Replies

HS & Yoga

Is it ok to practice yoga?

ASilva

•12 years ago

8 Replies

ESA - medical

Got date for medical 13th september. They have sent route to get to centre states takes 7 mins to walk to bus stop at the end of the road. Actually takes me 30...

Got date for medical 13th september. They have sent route to get to centre state...

sharonap

•12 years ago

8 Replies

Visit to St Mary's recurrent miscarriage clinic

Well my husband and i made the journey from derbyshire to London for an appointment with Mr Ray Ray. All in all the appointment was successful. We discussed my...

Well my husband and i made the journey from derbyshire to London for an appointm...

kateb81

•12 years ago

9 Replies

Blood tests with Fragmin

Hi does any one know if you have to have blood tests regularly while on Fragmin and also how do they know what amount of Fragmin to give you to give you a inr...

Hi does any one know if you have to have blood tests regularly while on Fragmin ...

Moonbug

•12 years ago

3 Replies

Has anyone got any ifo about this drink

I was sent a link to this website be a friend of my husband, and I just wondered if anyone knows anything about this particular product....

I was sent a link to this website be a friend of my husband, and I just wondered...

phoenix77

•12 years ago

3 Replies

Does anybody else here have Multiple Sclerois AND APS?

Hi, I have both of the above, recently diagnosed with APS after a series of frightening clots, and, I have discovered recently that I suffered a stroke that...

Hi, I have both of the above, recently diagnosed with APS after a series of fri...

anniesensi

•12 years ago

15 Replies

Things not quite so good.

Following my surgery last week when I had stents inserted to unblock the clots, I was doing very well. Had a couple of twinges in my groin on Friday but...

Following my surgery last week when I had stents inserted to unblock the clots, ...

Glitterwitch

•12 years ago

7 Replies

Just diagnosed APS, Already have MS, Need support and advice please

Hi, I have MS, I was dx when I was 28 - now 37. It is a definite diagnosis. I had what I thought was a killer MS relapse 2 and a half years ago, and have been...

Hi, I have MS, I was dx when I was 28 - now 37. It is a definite diagnosis. I ha...

anniesensi

•12 years ago

21 Replies

Has anyone out there lost a limb due to complications from APS?

wedgeman

•12 years ago

3 Replies

Article on lupus fatigue

Thought this may be of interest: http://www.lupus.org/webmodules/webarticlesnet/templates/new_empty.aspx?articleid=4659&zoneid=76 Gina

Thought this may be of interest: http://www.lupus.org/webmodules/webarticl...

GinaD

•12 years ago

1 Reply

What affects your INR level when taking Coumadin/Warfarin?

I know that vitamin K and spinach are no-no's. What else might affect it? I'm new and learning! Thanks! :)Michelle in CA

I know that vitamin K and spinach are no-no's. What else might affect it? I'm ne...

iwantsimple

•12 years ago

27 Replies

What if??

Just had a call off my sister to be told my 1/2 brother's wife's daughter has just died from a clot :O you can but imagine what is now going through my...

Just had a call off my sister to be told my 1/2 brother's wife's daughter has ju...

Suzypawz

•12 years ago

10 Replies

Fragmin and bleeding does anyone else get this.

Hi I have started Fragmin 2 days ago the only thing I'm concerned about is today at work I noticed blood coming from one of the injection marks not a lot just...

Hi I have started Fragmin 2 days ago the only thing I'm concerned about is today...

Moonbug

•12 years ago

4 Replies

How long does it take you to get moving in the morning when you wake up?

My doc asked me this which I had never really put any thought to it before, I guess it always was just the way it is.... I realized though that it usually...

My doc asked me this which I had never really put any thought to it before, I gu...

Hidden

•12 years ago

9 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for August 2012

Anybody suffer from alopecia?

Sorry one more question about the fragmin :)

INR the ups and downs

What's your area ? !!!

Tired?

Hitting a vein with fragmin injection

Morning.rollercoaster inr :(

Helping push petitions along.

Insertion in APS ACTION

heat type feeling in head - some days

thanks for messages of support

I've written many blogs, because I have many questions! here's another. Can anybody please interpret this for me?

The height of Irony? ATOS sponsoring Paralympics...........

ESA medical

Mary F Is that picture Mrs Slokem???? From R U Being Served??

Questions and comments advice needed

HS & Yoga

ESA - medical

Visit to St Mary's recurrent miscarriage clinic

Blood tests with Fragmin

Has anyone got any ifo about this drink

Does anybody else here have Multiple Sclerois AND APS?

Things not quite so good.

Just diagnosed APS, Already have MS, Need support and advice please

Has anyone out there lost a limb due to complications from APS?

Article on lupus fatigue

What affects your INR level when taking Coumadin/Warfarin?

What if??

Fragmin and bleeding does anyone else get this.

How long does it take you to get moving in the morning when you wake up?

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