What's your area ? !!!

[TreyBon64]

I'd really love to know that I'm not the only one in my area (Runcorn, Cheshire, UK) that has this condition. So I'm putting a request out for anyone in my area that I can meet up with and have a coffee or even to just chat with every now and again. Feels so lonely to think I'm the only one, I can't be ... Hello out there !!!! xx Trey xx

[77tiger05]

Wish I could help. I am in North Carolina, USA. But will look you up for that cup of coffee if I ever get over there. Good luck with hello out there!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

[TreyBon64 in reply to 77tiger05]

And you'll be very welcome xxx

[sharonap]

Hi Trey, I live in Ellesmere Port not too far away from runcorn. I would love to meet up or chat. Have sent you a pm.

[TreyBon64]

Hiya hun ... thank you xxx

[Flandy]

Hi Trey, i live in dartford kent. bit far for a cuppa but always around for a chat x x x

[TreyBon64 in reply to Flandy]

Thanks Flandy xxxxx Trey xxxxx

[Pablosmum]

Hi, I'm from Bury, Lancs so not that far away....

Helen x

[TreyBon64 in reply to Pablosmum]

Hey Helen ... No your not that far away and finding another fellow "sufferer" in my area is good enough for me. As long as your near and at the end of the line at some time is good enough for me. Nice to meet you Helen xxx Trey xxx

[lynzy]

Hi

I'm on the Wirral, so not far away either. Always here for a chat. Couldn't get to you as, thanks to my Tia's I've lost my licence. Nice to know we're not alone. It can be very isolating in this situation can't it?

[TreyBon64 in reply to lynzy]

Hi Lynzy ... yes it is isolating and I feel like I have to fight the good fight on my own.

Don't worry about the travelling hun ... as long as I know someone is at the end of line in near is good enough for me. I think it is too much of me to ask and hope that someone lives in my immediate area. xxx Thank you hunxxx Trey xxx

[TreyBon64]

I've made a note of all of your names and any emails that have been kindly pm'd to me on a special page in my remembering book (yes I have one of those too). I'm not the pestering type so if you don't hear from me all the time doesn't mean I've forgotten about you. But to know you are there if I'm ready to bang my head on the wall or take up knife throwing is a comfort and I'd like to know that I could do the same for you. Thank you all xxxxxxxxxxxxxxxx Trey xxxxxxxxxx <3 (that's a heart on it's side)

[BrazilianBade]

Wish I could help too, but I am rather far from you... I live in the highlands of Rio de Janeiro, in a town named Petropolis. I don't know anyone from Rio who takes part on this network hope you find more people around you to discuss and talk openly about the APS. xoxo,Brazilian Bade

[TreyBon64 in reply to BrazilianBade]

Thank you xxx

[lynzy]

Always here for a chat anytime x

[Barbie]

I'm in Texas! USA.

[TreyBon64 in reply to Barbie]

Hi Barbie ... Hello !!!!! xxxxxx

[emmaj]

Hya, Im originally from Widnes but have lived in runcorn - im now in shropshire but head home soemtimes to catch up with friends and family - ill pm you next time im up xx

[TreyBon64 in reply to emmaj]

Hi Emma ... thank you xx ... You left this hell hole of Runcorn eh good on you ... I'm still digging my escape tunnel ... slow going with aps lol xxx

[lynzy in reply to TreyBon64]

Thanks for posting that message to ask where people are. I don't feel so alone either now! got no sleep,last night, so now feel like I'm walking through mud today, rain doesn't help either. My aps is a lot worse when I'm tired, how about you? Have a good day despite the rubbish weather.

[TreyBon64 in reply to lynzy]

Sorry for the delay in replying Lynzy ... I've had a lot on my plate recently, causing stress and that makes the aps worse. I'm terrible when I'm tired, and esp stressed as it makes the brain fog worse and then along come the migraines. I didn't sleep very well last night and today is a migraine day, joints feel like i'm being quartered or on the rack. Trying to put a happy brave face on is hard but have to do it for little one. I'm waiting to hear from the dr with the result of my recent mri's of neck and spine. Whatever the result it will tell me what the next step is ... injections or an op to replace discs xxx Hope you are having a better day xxxx Trey xxxx

[lynzy in reply to TreyBon64]

Hi not too bad today. Loving this sunshine,just going to change into some Bermuda shorts and t shirt and going to read a book in the garden. The heat helps my back as had a bad car crash 23 yrs ago and suffered bad spinal injuries, so heat treatment is always a good option it eases it a little xx

[TreyBon64 in reply to lynzy]

Good to hear someone is having a good day ... now going to try and do a little in the garden. Don't hold out much hope being as I still have the migraine. Enjoy your day xxx and your book lol xx

[emmaj]

I reckon its the chemicals of the mersey that doesnt help - even our immune systems are on heightened alert!! Slightly better since granox and the factories shut down. I do enjoy coming home though i must say x

[TreyBon64 in reply to emmaj]

Sorry for the delay in replying, I've had a lot on my plate recently.

You're probably right in part about the mersey lol, but the council are trying their best to keep it clean now lol. You enjoy coming home lol and I'm hoping one day to get out and never come back ... you know what they say ... be careful what you wish for ... :/ ... xxx

[Jade]

West Yorkshire, anybody else?

[TreyBon64 in reply to Jade]

Hi Jade ... Start a blog asking about West Yorkshire hun as in my initial one I've asked about Runcorn and cheshire ... good luck in finding fellow aps members in your area. xxx Trey xxx

[Kernow]

For the record I live in Rutland - with Peterborough, Leicester and Nottingham within easy reach.

[AngelinaN]

Hello Trey

I am in Runcorn - diagnosed APS 2001 - currently recovering dvt

Angie

[TreyBon64]

Hi AngelinaN I was diagnosed in about 2006 and it's been a struggle since as I'm a single mum. I live on Palacefields, how about you? Trey

[AngelinaN]

I live In Murdishaw - just a walk across town park to Palacefields...my Gran was in Badger Close

I have no children - just 7 miscarriages

I am recovering now from 3rd dvt - but since 2008 been very poorly and told I was APS - but noone understood it - until things came to a head Nov -14

So now I am under prof Martlew at Liverpool

[TreyBon64]

Oh Angie I'm so sorry 😟 I had 1 miscarriage before I was blessed with my daughter in 2004, I've been unable to have anymore children and I'm too old now at 51. It is difficult adjusting once you get a diagnosis. For me ... my eyesight is suffering. I'm going blind in my right eye but for now I make do as I can. My rheumatologist does the best she can but APS doesn't play fair. My rheumatoid arthritis is being a biatch lately as is the osteoarthritis. I also suffer with symptoms of MS but I don't have it ... again it is the APS being a pig. I live on manor fell estate. We'll have to meet up for coffee and put the world to rights soon. I feel very bitter and angry towards APS ... I had a great job and was happy working ... now I struggle, esp since before Christmas, to have some sort of normal life. I'd love to work but half the time I can't remember who I am, my date of birth and where I live. Today I have a raging migraine so I'm off for a shower to see if it will ease it; have to be careful though because of my balance. Take care Angie and hope you are feeling much better very soon XxxxX Trey XxxxX