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Hughes Syndrome APS Forum

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Could my APS be the reason that I catch anything that's going around?

struggling profile image
6 Replies

My haematologist has told me that she believes that I could well have had APS since birth. All my life I've suffered out of proportion with viruses and infections. When I catch something, it hits me very hard and lasts a lot longer than with other people who appear to have caught the same thing. I dread illness spreading through my workplace, because when (not if) I catch it, it'll just floor me for perhaps a week or two (and I won't feel right for perhaps another couple of weeks), whereas my colleagues will feel poorly for a day or so and that's it. I'm wondering if my immune system has been in a permanently weakened state. Not had a lot of support from docs on this question. Regards to you all.

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struggling profile image
struggling
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6 Replies
WayneL profile image
WayneL

Hi, Struggling.

I would think that given the average state of APS patients immune systems, it would seem logical to assume that a weak immune system would not perform to its best and as a result keep you sicker for longer periods than "normal" .

I agree with your hematologists belief, in that the longer you've had this syndrome, the longer it would take to recover from even the smallest infection.

Wayne L

Suzypawz profile image
Suzypawz

I presume it would affect your immune system like this if you'd had aps since an early stage....

In my case I had a very good immune system when I was young, never got anything...colds, measles even spots!

But when I was in my 20's I caught chicken pox from my kids & was really bad with it, developed allergies then got told I had aps when 31, I still believe I developed it from the big shock when I lost my father? as it was just before I develpoed all these & my immune system went to pot........

I too get very ill from even a cold now.......

Sue.

emmaj profile image
emmaj

ive always suffered terrible with colds, other people seem to be able to carry on but im floored!

Tomcat profile image
Tomcat

I've found that since I was diagnosed I do get battered if I catch a cold, I tend to get all the normal symptoms of a cold plus all my usuall APS symptoms get magnfied. I found that if I temporarily increase the steroids for a couple of days then that helps a lot.

Lesley_D profile image
Lesley_D

Hi there, yup also for me too. I have bout after bout of colds that go straight into a chest infection and pluersy. I find I am on regular steroids.... Which poses another question..... Don't prednisilobe and the like affect our immune system? I wonder is the drug given to help us actually harming us too??!

Lesley

Jade profile image
Jade

Oh dear maybe I am odd but I really don't catch anything. I always assumed that was because we have an over active immune system which fights everything including ourselves.

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