Hiya, I have hughes syndrome and have been diagnosed for 6 years now. Tom, my youngest son, 13, has had livedo for ever really but of late has had chest pain, nose bleeds lasting half an hour, petechia and ecchymoses, pulled ligaments both knees and now purple freezing cold right leg. They are querying raynauds but with possibly something else such as Hughes underlying.
He was admitted overnight Friday till the purpleness and icy cold limb came back to life then discharged with a plan of orthopaedics and rheumatologists. I have asked for him to see great or mind street cos they deal with these problemsmore and the local doc said Tom has no symptoms of Hughes....mmmm???
Grateful for your thoughts zxxx