I had the biopsy Friday and I am happy to report NO clotting problems...or bleeding problems!!!! I was SO relieved. The night of the procedure I was home and scared to even sleep without anticoagulation so I stayed up until I could use Fragmin again.
The most worrisome part of the whole thing was being off anticoagulation for a day.
We all know that more knowledge needs to get out there about APS/Hughes...but I was shocked at how I was poo-poo'd by several nurses/doctors about APS. Most asked me what it was. Another saw hypercoaguable and said Oh...you have Factor V Leiden. I said yes and Antiphospholipid Syndrome. He said well I am just putting down Factor V Leiden on your papers. Ugh.
If someone has diabetes and coronary heart disease...are you just going to put one of them down??????
The experience of the biospy itself had some rotten parts which I will be addressing with the proper people on Monday. Results will be in probably Tuesday or Wednesday.
At any rate...I feel like I need to take a HUGE poster and books with me to distribute to nurses and doctors each time I have to go to the hospital. Onward we go.