inr ranges

[panda60]

St Thomas' set my inr range at 3 - 4 and the clinic try to keep it around 3.5, I was ok with that but now that I also have fibromyalgia find that around 4 is best for me. I know that is really too high, but wondered if anyone has been allowed to keep theirs around 4.0

Thanks

Caroline

[tim47]

3.8 to 4.0 (from Prof H) case history, which I think must be born in mind, includes several bouts of PEs, stroke, multiple PEs. Self-test and stay pretty close.

[Manofmendip]

Hi Caroline

Prof Huhes told me to be in the range 3.8 to 4.2 and I self test and try to keep it there. It has gone to 5.2, in a blip, and I've not had a problem but if it goes below about 3.3 I feel terrible.

Best wishes.

Dave

[Renae]

Fibro has nothing to do with your inr or aps. I have bleed out from an inr of 4. Please becareful...

[daisy11]

I have been set 3-4.5 by ST T and when it goes below 3.5 I just know it is lower and then when it is higher say 3.8 onwards, I also feel terrible. I self test with blood tests done inbetween and it is just getting it right. I do not have a stable INR but I am now alot better in my mind knowing it is the INR that effects my dizzy ness etc

[olleberj]

I keep mine between 2.8 and 4.2, and my doctor agreed with my earlier request to expand the range to this. I used to try to stay 3.0 - 4.0 and it was very difficult to stay between these points...I would constantly yo yo with medication changes after each test. Now that the range is slightly expanded, it's much better for me and I no longer need to frequently change doses.

[panda60]

Thanks everyone for your helpful answers. Difficult to know what to do for the best as the combination of the fibro fog and Hughes fog is unbearable some days. I have got an appointment at St Thomas' in September - at least I hope so as it has been cancelled several times - and will discuss it with my consultant.