Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,360 members • 10,549 posts

All posts for November 2011

Painfull fingers, hand and toes, Anyone else?

I have them sharp needle / stinging pains in my left fingers again (2 off them) the white hard lumps in my hand have now made the left outside edge of my hand...

I have them sharp needle / stinging pains in my left fingers again (2 off them) ...

Gadgets

•13 years ago

7 Replies

Screaming Lower Back Pain

I have been going through a series of awful flares of lower back pain. I thought they would follow some pattern (i.e. increasing or decreasing in severity);...

I have been going through a series of awful flares of lower back pain. I though...

TheKid

•13 years ago

5 Replies

Giving advice.....

I got asked today to talk to someone in Scotland as a friend recognised symptoms I've mentioned previously to them. She gave me her contact detals & I spent...

I got asked today to talk to someone in Scotland as a friend recognised symptom...

Suzypawz

•13 years ago

9 Replies

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When first seeking a dagnosis for APS is it better in the UK to see a Consultant Haematologist first or a Consultant Rheumatologist? Julie99

julie99

•13 years ago

12 Replies

Remembrance Sunday

On a cold November Sunday morn, an old man sits a while Looking though old photographs, he can’t help but smile They’re all there, all the boys, with hair...

On a cold November Sunday morn, an old man sits a while Looking though old phot...

paddyandlin

•13 years ago

3 Replies

Full moon, does it effect you ?

This maybe daft it probably is.On thursday my INR was 3.7 good for me so I found it difficult to understand why I had such a bad day yesterday, Forgot where to...

This maybe daft it probably is.On thursday my INR was 3.7 good for me so I found...

daisyd

•13 years ago

4 Replies

Anyone on Fondaparinux?

If you are, can you let me know what dose you're on? I've been switched from Tinzaparin to fondaparinux due to osteoporosis, but only at 5mg per day which I...

If you are, can you let me know what dose you're on? I've been switched from T...

Womanfriday

•13 years ago

3 Replies

Any info on Pregabalin (Lyrica)

The Rheumy has put me on Pregabalin (lyrica) because ive been having real problems with pain in my feet its like walking on hot coals particularly on first...

The Rheumy has put me on Pregabalin (lyrica) because ive been having real proble...

margaretjo

•13 years ago

6 Replies

Paleo Diet

Not sure how the rest of folks on this site are treating their APS, but on a lot of other sites I see a heavy bias towards medication. People take one thing...

Not sure how the rest of folks on this site are treating their APS, but on a lot...

TheKid

•13 years ago

17 Replies

My Story my road (shortened version) to diagnosis

As far back as I can remember from 18 onwards I think my first symptom was stomach pain In 1991 I became pregnant for the first time. I struggled with the...

As far back as I can remember from 18 onwards I think my first symptom was stoma...

TJSTICKYBLOOD

•13 years ago

6 Replies

Is d-dimer results always high with APLS

I have always had the D-Dimer (spelling?) blood test when It was thought i had aclot and obviously they have been high when i have but yesterday the doctor...

I have always had the D-Dimer (spelling?) blood test when It was thought i had ...

margaretjo

•13 years ago

5 Replies

Cause of GERD

Could someone help me by explaining WHY those of us with APS often suffer from GERD. I've read that it has to do with inadequate blood flow to the digestive...

Could someone help me by explaining WHY those of us with APS often suffer from G...

TheKid

•13 years ago

5 Replies

Changable eyesight?

Hi all I'm sure this has been covered but my eyesight is so changable at the moment I can't keep up. I used to have perfect vision and then i got a CSR...

Hi all I'm sure this has been covered but my eyesight is so changable at the ...

Hidden

•13 years ago

7 Replies

Varicose Veins and Hughes

Is it dangerous to have a varicose vein and hughes?

tracydavies

•13 years ago

7 Replies

Question for the sero-negatives...

Did any part of your testing show clotting problems with negative antibodies, or are the whole lot 'normal'? Thanks all.

Did any part of your testing show clotting problems with negative antibodies, or...

CindyCB

•13 years ago

8 Replies

Aches and Pains

HI to all I have a question?? I suffer with aches and pains in my joint especially in my toes and fingers which when I get pain in my fingers they start...

HI to all I have a question?? I suffer with aches and pains in my joint es...

Stannington-lad

•13 years ago

9 Replies

any1 knw hw i can publih my story 2 raise awareness n money 4 the foundation....

rach1081985

•13 years ago

9 Replies

INR UNSTABLE....HAD UTI4 WEEKS AGO .....TREATED WITH FURADANTIN WHICH MADE ME REALLY ILL...VOMITING ETC.NOW INCREASE IN JOINT PAINS...

ESPECIALLY BACK AND UPPER LIMBS....ALSO I HAVE LOST A LOT OF WEIGHT BUT FEELING MISERABLE!

ESPECIALLY BACK AND UPPER LIMBS....ALSO I HAVE LOST A LOT OF WEIGHT BUT FEELING ...

margaretmulhern

•13 years ago

4 Replies

Are There Any Standard APS Assessment Protocols?

Hey all, I wanted to know if there are any standard APS assessment protocols in place at the moment for the treatment of those who already have APS. Let me be...

Hey all, I wanted to know if there are any standard APS assessment protocols in ...

TheKid

•13 years ago

3 Replies

High Inr!!!! Feeling better!!!

Hi all Went docs today, antibiotics for chest infection again. Doc wanted more bloods done, checking platelets cos of plaquenil. I asked for an inr check...

Hi all Went docs today, antibiotics for chest infection again. Doc wanted more...

jessielou

•13 years ago

8 Replies

Can someone help me with symptoms? Is is possible to be on Heparin and Warfarin and still experience awful symptoms? Help please.

I suffered a massive DVT in 2003 that almost killed me. Had another in 2009. Finally diagnosed with APS in 2010. Have been on Coumadin, but now realize I was...

I suffered a massive DVT in 2003 that almost killed me. Had another in 2009. Fin...

TheKid

•13 years ago

4 Replies

thanks everyone

Thanks everyone for your supportive messages. It means so much to know that others are going through the same. I have felt dreadful the last few days and...

Thanks everyone for your supportive messages. It means so much to know that othe...

panda60

•13 years ago

2 Replies

Anybody gone from warfarin back to fragmin?

I am wondering whether to ask if I can try going back to fragmin alone. I have been on warfarin for 6 years and right now it is driving me nuts. I think I am...

I am wondering whether to ask if I can try going back to fragmin alone. I have b...

Jade

•13 years ago

3 Replies

When you found out you has aps where did you go for support and info?

The reason I am asking is looking to see how we can improve the site for you members

The reason I am asking is looking to see how we can improve the site for you mem...

paddyandlin

•13 years ago

19 Replies

TAKING CLOPIDOGREL AND WARFARIN

I wonder if you can help - I take a number of drugs, about 24 and two of them are Clop and War, can I take them the same time as each other? i.e. 6pm at...

I wonder if you can help - I take a number of drugs, about 24 and two of them ar...

daisy11

•13 years ago

2 Replies

does any1 knw of anyways i can b steralised???? it is 2 dangerous 4 me 2 get pregnant again????? i have implant bt drs say im 2 young 4 op

rach1081985

•13 years ago

8 Replies

i want 2 set up a support group in south wales 2 make ppl aware...... any1 gt suggestions on how 2 make a start.....

i want 2 set up support group in south wales any1 knw how i can do this any suggestions would b appreciated

i want 2 set up support group in south wales any1 knw how i can do this any sugg...

rach1081985

•13 years ago

8 Replies

does any1 know about self testing inr???

i would like 2 test my inr myself instead of weekly trips 2 hospital....... my gp doesnt knw anythin n i hav no help frm my haemotologist???

i would like 2 test my inr myself instead of weekly trips 2 hospital....... ...

rach1081985

•13 years ago

11 Replies

Does anyone have itchy skin/small blisters?

Hi all - does anyone else have small nodules on the skin at the top of arms and thighs - they can get quite itchy at times - i know that aps sufferers can have...

Hi all - does anyone else have small nodules on the skin at the top of arms and ...

emmaj

•13 years ago

6 Replies

me n my diagnosis

hi im rachel 26 hav been diagnosed with aps 4 nearly 4 yrs now and on warfarin. i hav 2 children 8 nd 7 mnths....... nearly 4 yrs ago i was unwelll...

hi im rachel 26 hav been diagnosed with aps 4 nearly 4 yrs now and on warfarin. ...

rach1081985

•13 years ago

7 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for November 2011

Painfull fingers, hand and toes, Anyone else?

Screaming Lower Back Pain

Giving advice.....

When first seeking a dagnosis for APS is it better in the UK to see a Consultant Haematologist first or a Consultant Rheumatologist? Julie99

Remembrance Sunday

Full moon, does it effect you ?

Anyone on Fondaparinux?

Any info on Pregabalin (Lyrica)

Paleo Diet

My Story my road (shortened version) to diagnosis

Is d-dimer results always high with APLS

Cause of GERD

Changable eyesight?

Varicose Veins and Hughes

Question for the sero-negatives...

Aches and Pains

any1 knw hw i can publih my story 2 raise awareness n money 4 the foundation....

INR UNSTABLE....HAD UTI4 WEEKS AGO .....TREATED WITH FURADANTIN WHICH MADE ME REALLY ILL...VOMITING ETC.NOW INCREASE IN JOINT PAINS...

Are There Any Standard APS Assessment Protocols?

High Inr!!!! Feeling better!!!

Can someone help me with symptoms? Is is possible to be on Heparin and Warfarin and still experience awful symptoms? Help please.

thanks everyone

Anybody gone from warfarin back to fragmin?

When you found out you has aps where did you go for support and info?

TAKING CLOPIDOGREL AND WARFARIN

does any1 knw of anyways i can b steralised???? it is 2 dangerous 4 me 2 get pregnant again????? i have implant bt drs say im 2 young 4 op

i want 2 set up a support group in south wales 2 make ppl aware...... any1 gt suggestions on how 2 make a start.....

does any1 know about self testing inr???

Does anyone have itchy skin/small blisters?

me n my diagnosis

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