Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

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All posts for November 2011

My Life Story: Part 4 - aged 30 (Updated October 2010)

Update October 2010: Every so often I read my story and look back on the last period with the intention of updating my story. Sometimes I feel that the...

Update October 2010: Every so often I read my story and look back on the last...

Hidden

•12 years ago

12 Replies

My Life Story: Part 3 - aged 28 (Updated March 2009)

Update: March 2009 I have just re-read my story; it's quite traumatic really isn't it? Sitting here in my office in central London, it's really quite...

Update: March 2009 I have just re-read my story; it's quite traumatic really...

Hidden

•12 years ago

My Life Story: Part 2 - aged 25 (Updated September 2005)

Update: September 2005. Isn't it funny how things can turn around so quickly; how things can get better almost as quickly as they went wrong in the first...

Update: September 2005. Isn't it funny how things can turn around so quickly...

Hidden

•12 years ago

1 Reply

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My Life Story: Part 1 - aged 19 (Living with Lupus and Hughes Syndrome)

Hi - this is a REALLY long one - covers four blogs - but i have been writing it since the Summer of 2000 so it's been dramatically shortened!! Hope by putting...

Hi - this is a REALLY long one - covers four blogs - but i have been writing it ...

Hidden

•12 years ago

2 Replies

New symptoms - aching, heavy legs and swelling above ankles?

Over the last 2 or 3 months I've developed some new symptoms that are getting more frequent. Heavy and aching (almost to the point of being painful now) legs...

Over the last 2 or 3 months I've developed some new symptoms that are getting mo...

travelnut

•12 years ago

4 Replies

Low blood pressure

Hi all well I am now 4 days in with plaquenil, obviously not working yet, they take time. Side effects so far nausea, dizziness, abdominal pain, headache....

Hi all well I am now 4 days in with plaquenil, obviously not working yet, they ...

jessielou

•12 years ago

8 Replies

lots of blood drawn seemsto take its toll

on nov 2 nd rheumy ordered lots of tests [this is good ].on nov 3 rd tests in reg lab work done. later on the day of second draw , lightheaded, gitters ,...

on nov 2 nd rheumy ordered lots of tests [this is good ].on nov 3 rd tests in re...

jetjetjet

•12 years ago

27 Replies

UPDATES on blind spots in your vision

Just found out that my inr was 1.6 which is the lowest its been for a long time. The reason for this must have been that I stopped taking cocodamol and...

Just found out that my inr was 1.6 which is the lowest its been for a long time....

9090heatherm

•12 years ago

5 Replies

HIGH INR DUE TO 72 FASTING FOR TEST IN HOSPITAL

well for the last 4 days been in hospital for a fasting glucose and it has effected my INR so bad 8.9, I have felt lousy, worried about bleeding and now have...

well for the last 4 days been in hospital for a fasting glucose and it has effec...

daisy11

•12 years ago

9 Replies

worn out again!

Really fed up again today. I just don't seem to be able to get my act together as I just feel so worn out all the time and mentally muddled. Trying to lost...

Really fed up again today. I just don't seem to be able to get my act together ...

panda60

•12 years ago

8 Replies

was feeling a little low

Hello everyone I was feeling a little low, forgot how to pull my trousers up, forgot how to walk with 2 legs (you tend to hit walls alot), worst of all I...

Hello everyone I was feeling a little low, forgot how to pull my trousers up, f...

SharontheSheep

•12 years ago

9 Replies

Travel Insurance

Hi there Does anyone know the best place to secure travel insurance to account for pre exisitng blood clot related disorders?! We are going to South Africa...

Hi there Does anyone know the best place to secure travel insurance to accoun...

Karen_Probyn

•12 years ago

18 Replies

VENTING....sorry

Hi Everyone : ) My Sis (Karen) is being batted around (since Spring) over here (U.S.) from hospital(s) to nursing home(s)....She has been diagnosed at one...

Hi Everyone : ) My Sis (Karen) is being batted around (since Spring) over he...

Lene

•12 years ago

14 Replies

What's your most shocking clotq

When i was diagnosed in hospital they discovered i had clotted off one of my kidneys i was wondering if any of you have been shocked to discover that something...

When i was diagnosed in hospital they discovered i had clotted off one of my kid...

TJSTICKYBLOOD

•12 years ago

11 Replies

Just diagnosed, please help?

Just diagnosed. Where do I even begin? Waiting to get a referral to rheumatologist.. I'm only 33. Any suggestions? Is this diagnosis going to be the cause...

Just diagnosed. Where do I even begin? Waiting to get a referral to rheumatolo...

Hilariew930

•13 years ago

9 Replies

Tiredness when on Clexane

Has anyone been on long term clexane, suffering with severe tiredness to the point of not wanting to get up, not having the strength and walk. I am taking...

Has anyone been on long term clexane, suffering with severe tiredness to the poi...

Helenbeth

•13 years ago

8 Replies

Kevin the Kidney's Charity Ceilidh - an open invite!

Hi all I'm not sure if any of you are close enough but if you fancy a wee bit of scottish country dancing and general silliness in deepest, darkest...

Hi all I'm not sure if any of you are close enough but if you fancy ...

Hidden

•13 years ago

5 Replies

Student Nurse with Hughes

Keep trying to spread the word about Hughes on my clinical placement but as yet haven't spoken to one health professional who has ever heard of it. But am in...

Keep trying to spread the word about Hughes on my clinical placement but as yet ...

studentnurse1970

•13 years ago

12 Replies

back from rheumy , good things

i guess i lucked out [jess] i yhink i got a good one - 19 vials of blood , he is going to recheck every thing, when i talked he listened, is very much , as far...

i guess i lucked out [jess] i yhink i got a good one - 19 vials of blood , he is...

jetjetjet

•13 years ago

13 Replies

new to website

hello everyone, have really enjoyed reading all your posts. i was admitted to tommies 8yrs ago by dr d'cruz for tests, had a positive mri and lumber puncture...

hello everyone, have really enjoyed reading all your posts. i was admitted to to...

mully

•13 years ago

9 Replies

Azithiropine

Please can anyone tell me if they are using the above medication and how it has made them feel. I ve heard lots of stories , I'm due to start this in a month.

Please can anyone tell me if they are using the above medication and how it has ...

Diane50

•13 years ago

9 Replies

Just a quick update

I thought I had done this a couple weeks ago but I can't seem to find my post anywhere... I had the visit to the rheumy and many other visits with other...

I thought I had done this a couple weeks ago but I can't seem to find my post an...

Hidden

•13 years ago

4 Replies

so fed up

last week saw my consultant at local hospital what a waste of time, all hes concerned about is my high blood pressure, wnich only seems to be high when i visit...

last week saw my consultant at local hospital what a waste of time, all hes conc...

alanpaul

•13 years ago

17 Replies

Sick Note

Well, off to GP'a tomorrow to extend my sick certificate as still dont feel like I have any energy to go back to work yet. Gonna see a different GP tomorrow...

Well, off to GP'a tomorrow to extend my sick certificate as still dont feel like...

Sue2803

•13 years ago

14 Replies

Halloween fun!

We went to a Halloween party at a pub on Saturday, great night & a band was playing. Most of the punters went dressed up, so it was a good laugh! :) We...

We went to a Halloween party at a pub on Saturday, great night & a band was play...

Suzypawz

•13 years ago

6 Replies

A poem I wrote early after diagnosis

Hi all Don`t know if this any good, My fella and daughter say it is, so here goes.:: Hold My Hand!!! What is this shadow trailing me? It is so dark,...

Hi all Don`t know if this any good, My fella and daughter say it is, so here g...

jessielou

•13 years ago

16 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for November 2011

My Life Story: Part 4 - aged 30 (Updated October 2010)

My Life Story: Part 3 - aged 28 (Updated March 2009)

My Life Story: Part 2 - aged 25 (Updated September 2005)

My Life Story: Part 1 - aged 19 (Living with Lupus and Hughes Syndrome)

New symptoms - aching, heavy legs and swelling above ankles?

Low blood pressure

lots of blood drawn seemsto take its toll

UPDATES on blind spots in your vision

HIGH INR DUE TO 72 FASTING FOR TEST IN HOSPITAL

worn out again!

was feeling a little low

Travel Insurance

VENTING....sorry

What's your most shocking clotq

Just diagnosed, please help?

Tiredness when on Clexane

Kevin the Kidney's Charity Ceilidh - an open invite!

Student Nurse with Hughes

back from rheumy , good things

new to website

Azithiropine

Just a quick update

so fed up

Sick Note

Halloween fun!

A poem I wrote early after diagnosis

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