i want 2 set up a support group in so... - Hughes Syndrome A...

Hughes Syndrome APS Forum

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i want 2 set up a support group in south wales 2 make ppl aware...... any1 gt suggestions on how 2 make a start.....

rach1081985 profile image
8 Replies

i want 2 set up support group in south wales any1 knw how i can do this any suggestions would b appreciated

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rach1081985 profile image
rach1081985
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8 Replies
MaryF profile image
MaryFAdministrator

Hello there, please contact kateH, for some guidelines and advice, which reminds me that I am supposed to be starting one in East Anglia, based in Woodbridge Suffolk. Thank you for the timely reminder! Mary F

rach1081985 profile image
rach1081985

thnx luv xxx n gd luck with urs xxxx

Suzypawz profile image
Suzypawz

Hi hun...yet again I'm in a similar boat!!

I'm starting a support group near me ( Staffordshire & Derbyshire ) or for whoever would like to come over :)

Kate is the one to contact, I think they already have one in Wales but you could still ask?! :)

I will be contacting the local papers too so to get some more awareness out.

Good luck & maybe you could come down to mine!! :)

xx

london-lass profile image
london-lass

Hi to you all

It is great fun leading a group. Just be brave and take the plunge. All the groups are different, but Kate has the information about all the groups. There are quite a few people in South Wales, so go for it. We have such fun in our group. It is so lovely to meet folk who understand!

rach1081985 profile image
rach1081985 in reply to london-lass

awww thnx hun yea will contact kate cos wanna do summit xxx

LesJames profile image
LesJames

I am moving to South Wales Early next year. Not sure if I am eligible because I don't have a diagnosis yet

jessielou profile image
jessielou

Hi les

not having diagnosis doesn't rule you out hon. Sometimes the path to diagnosis a long one, many of us have walked it, is very frustrating too!! so you be welcome in any group.

Hope you feelin well today.

Take care gentle hugs sheena xxxxx jessielou xxxxx :-) :-) :-)

jessielou profile image
jessielou

Hi rach

good on you wantin start a group! Suzi and i meet up is great talking to others who truely understand!!

Hope all well with you today!!

Take care gentle hugs sheena xxxxx jessielou xxxxx :-) :-) :-)

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