Hey all, I wanted to know if there are any standard APS assessment protocols in place at the moment for the treatment of those who already have APS. Let me be clear, I don't mean diagnosis of the disease itself. I mean assessment of patients who are having problems or some sort of major (or minor) flare up.
I am asking because I am in the middle of a flare up and it would be nice if there was a standard protocol that could be implemented by a doctor or a hospital to make sure that "all systems are OK." APS affects so many organs, systems and functions in the body. So I just feel that there should be some standardized set of tests or actions that a doctor could tick off on a checklist in order to determine if a patient is essentially OK or if they need to have further treatment other than just the regular adjustment of meds.
Ideally I would hope it would be a set of well-defined critical tests that could save lives. Because if anyone else is like me, I spend hours and days and weeks at hospitals, being given every single test each specialist can think of to give me. That gets darn expensive, and at some point, it probably leads doctors down the wrong road in terms of assessment and treatment. I would like to have something called the "APS Flare Protocol" (or something like that), that would be a more efficient and productive way of helping us when things go wrong.