Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,355 members • 10,542 posts

All posts for November 2011

Inr unstable

4 past 2 wks inr gone frm 1.1 2 1.4 bk 2 1.1 so gt take 14mg warfrin n clexene .gt 2 go 4 bloods every otha day.cld a common cold efffct ur inr

4 past 2 wks inr gone frm 1.1 2 1.4 bk 2 1.1 so gt take 14mg warfrin n clexene ....

rach1081985

•12 years ago

4 Replies

INR - part 3!!!!!

Hi, a little update . I can't seem to shake off this migraine, I can feel it actually moving around my head is this normal lost some sight in right eye...

Hi, a little update . I can't seem to shake off this migraine, I can feel it ...

Suzypawz

•12 years ago

9 Replies

HEAT TYPE FEELING IN HEAD

I just do not know how to describe this, but at times, when having a funny dizzy feeling I get this heat feeling in my head. It is really strange. No bad...

I just do not know how to describe this, but at times, when having a funny dizzy...

daisy11

•12 years ago

10 Replies

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Has any1

Has any1 had an ivc filter fitted

rach1081985

•12 years ago

1 Reply

Did u knw

Did u knw tha havin keyhole surgery is dangerous.i had 2 hav my apendix out last summer.n was due 2 hav keyhole bt sm surgeon said 2 dangerous as more risk ov...

Did u knw tha havin keyhole surgery is dangerous.i had 2 hav my apendix out last...

rach1081985

•12 years ago

4 Replies

may have fibromyalgia

Don't know what to think any more! Since Hughes diagnosis ten years ago I have also been told by St Thomas' that I don't have lupus but have some of the...

Don't know what to think any more! Since Hughes diagnosis ten years ago I have ...

panda60

•12 years ago

8 Replies

Gadgets Story

Hi (Edited version) My name is Garry I am 50 and live in Somerset South West UK. Like Paddy I am one of a few men with APS, I do post on other APS...

Hi (Edited version) My name is Garry I am 50 and live in Somerset South We...

Gadgets

•12 years ago

feeling nauseas

I was diagnosed with hughes syndrome in may this year. I have been suffering with feeling nauseas lately. I have had a bareium meal and an endoscopy done which...

I was diagnosed with hughes syndrome in may this year. I have been suffering wit...

bev1956

•12 years ago

5 Replies

it maybe a silly qustion

r we born with aps or does it develop over time

rach1081985

•12 years ago

16 Replies

Splinter Hemmorhages

I was wondering if anyone else gets splinter hemmorhages underneath their fingernail and/or toenails? Mine come and go and I am concerned as to why they are...

I was wondering if anyone else gets splinter hemmorhages underneath their finger...

TheKid

•12 years ago

6 Replies

how do they work out warfarin for the inr levels

Hello Well I am taking Warfarin and its being up and down over the months, what \\i would like to know is how they work out the medication. My INR has been...

Hello Well I am taking Warfarin and its being up and down over the months, wh...

daisy11

•12 years ago

11 Replies

A little paper bag

A little paper bag was feeling unwell, so he took himself off to the doctors. 'Doctor, I don't feel too good,' said the little Paper bag. 'Hmm, you...

A little paper bag was feeling unwell, so he took himself off to the doctors. ...

SuzanneJ

•12 years ago

8 Replies

Hi new here! but opinion advice needed on forthcoming knee replacement surgery

Hi was diagnosed with aps 3 years ago and put on 75mgs aspirin precautionary as never had dvt or any thing....do have livedo! also have sjogren's. I am facing...

Hi was diagnosed with aps 3 years ago and put on 75mgs aspirin precautionary as ...

cami

•12 years ago

12 Replies

Will you help me raise funds and publicity for HSF?

Will you help me raise funds and publicity for the Foundation? On Saturday 10th December 2011 my Wool Shop is 7 years old. I am marking this occasion with a...

Will you help me raise funds and publicity for the Foundation? On Saturday 10th ...

SharontheSheep

•12 years ago

7 Replies

Hey ppl

When cn i get my children tested 4 aps at the mo they only young?

rach1081985

•12 years ago

6 Replies

Awareness in Ireland ... at last!

This article:...

Hidden

•12 years ago

2 Replies

Kevin's birthday proper

Hello Just a quickie (phew!!) Just wanted to share my good news - it's Kevin the Kidney's 7th birthday today and i have just got blood tests back that...

Hello Just a quickie (phew!!) Just wanted to share my good news - it's Kev...

Hidden

•12 years ago

6 Replies

A very good news blog!

Having been referred myself to St Thomas'... now on second appointment next month, back to where I was originally treated in 1989 for multiple clots, and also...

Having been referred myself to St Thomas'... now on second appointment next mont...

MaryF

Administrator•12 years ago

6 Replies

Help

Hi me again Ive just been to my GP again to have my INR tested again coz it was 1.1 on monday and despite having my warfrin increased and being put on clexane...

Hi me again Ive just been to my GP again to have my INR tested again coz it was...

margaretjo

•12 years ago

6 Replies

How do you deal with fatigue?

Just wondering how everyone else deals with their fatigue. I'm 32 years old and struggle to get out of bed every day. SSRIs have helped some, but I still...

Just wondering how everyone else deals with their fatigue. I'm 32 years old and...

Hidden

•12 years ago

10 Replies

For you to use!!

Saw this, edited it & thought we could use it to warn other's!!!! :) I needed it earlier on my t-shirt!! Hope you like & it gives you a smile for the...

Saw this, edited it & thought we could use it to warn other's!!!! :) I neede...

Suzypawz

•12 years ago

5 Replies

Why do I feel like I've got to have a major clot before they'll treat me?

I've been off work now for 5 weeks. I probably should have stopped working a couple of months before that because I stopped being able to do my job about then....

I've been off work now for 5 weeks. I probably should have stopped working a cou...

SharontheSheep

•12 years ago

6 Replies

Inr gone potty...or is that just me?!!

As you may or not know...or forgotten!!! :) My inr was 3.2, then 2.3, then 2.0, then went up to 2.5 & I thought great....it's creaping up at last! :)...

As you may or not know...or forgotten!!! :) My inr was 3.2, then 2.3, then 2...

Suzypawz

•12 years ago

5 Replies

Keeping My Head Up

Have been diagnosed with Hughes now for 6 months. Have been having most of the symptoms that everyone else gets. My GP is and ANGEL. He is trying to keep my...

Have been diagnosed with Hughes now for 6 months. Have been having most of the ...

Mystynzl

•12 years ago

3 Replies

Immune-suppresents

I wondered how many of you had any experience with immune-suppresents and if so which one. I did notice on reading thru the site that they are sometimes used...

I wondered how many of you had any experience with immune-suppresents and if so ...

margaretjo

•12 years ago

4 Replies

Low Dose Naltrexone

Hey all. I was wondering if anyone here is using low dose naltrexone for their autoimmune issues. I've heard a lot about it and have had it recommended by...

Hey all. I was wondering if anyone here is using low dose naltrexone for their ...

TheKid

•12 years ago

7 Replies

Hi, Im 25 and jst been diagnosed with hughes syndrome, I had multiple PEs and DVT and am under the heamophila clinic at st

thomas hospital, I already have Chrons diease aswell. They havent really told me what it is, or what it means jst that i have to be on blood thinners for the...

thomas hospital, I already have Chrons diease aswell. They havent really told m...

niknak

•12 years ago

4 Replies

Yay

Yay gt my own way my gp has listend n i gt a referal 2 b steralisd im ova the moon!

Yay gt my own way my gp has listend n i gt a referal 2 b steralisd im ova the mo...

rach1081985

•12 years ago

8 Replies

Specialists

Any1 knw ov any specialist in gwent area south wales area.i use 2 c a dr sarah lewis bt no longer do.my doctors at local hosp n gps dnt knw much about aps

Any1 knw ov any specialist in gwent area south wales area.i use 2 c a dr sarah l...

rach1081985

•12 years ago

1 Reply

Hospital day

Off 4 bloods 2day inr due... Fingers crossd above 2 so cn stop my injections

rach1081985

•12 years ago

6 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for November 2011

Inr unstable

INR - part 3!!!!!

HEAT TYPE FEELING IN HEAD

Has any1

Did u knw

may have fibromyalgia

Gadgets Story

feeling nauseas

it maybe a silly qustion

Splinter Hemmorhages

how do they work out warfarin for the inr levels

A little paper bag

Hi new here! but opinion advice needed on forthcoming knee replacement surgery

Will you help me raise funds and publicity for HSF?

Hey ppl

Awareness in Ireland ... at last!

Kevin's birthday proper

A very good news blog!

Help

How do you deal with fatigue?

For you to use!!

Why do I feel like I've got to have a major clot before they'll treat me?

Inr gone potty...or is that just me?!!

Keeping My Head Up

Immune-suppresents

Low Dose Naltrexone

Hi, Im 25 and jst been diagnosed with hughes syndrome, I had multiple PEs and DVT and am under the heamophila clinic at st

Yay

Specialists

Hospital day

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