HEAT TYPE FEELING IN HEAD: I just do... - Hughes Syndrome A...

Hughes Syndrome APS Forum

10,397 members10,602 posts

HEAT TYPE FEELING IN HEAD

daisy11 profile image
10 Replies

I just do not know how to describe this, but at times, when having a funny dizzy feeling I get this heat feeling in my head. It is really strange. No bad pain, but heat and then goes away/ This is one question I am going to ask when I go to appt.

Written by
daisy11 profile image
daisy11
To view profiles and participate in discussions please or .
10 Replies
Storky profile image
Storky

Hi Daisy

If it helps, yes I think I know what you are describing and I get it too. I dont think its anything to worry about.

daisy11 profile image
daisy11 in reply to Storky

Thank you - its just good to know what other patients think

Stannington-lad profile image
Stannington-lad

Hi All, I get the same however I put it down to my Migraines, also I get cold feeling where my Migraines normally are too.

Hope this helps.

Herb profile image
Herb

Could be like a "hot flush"?

daisy11 profile image
daisy11 in reply to Herb

No not all - its all over head and then a pressure onto top of head.

jonesy1 profile image
jonesy1 in reply to daisy11

Yes I get it too, feels like my scalp is prickly as though full of pins but it is usually when I get a heat flush and it is not meopause related.

Sue x

daisy11 profile image
daisy11 in reply to jonesy1

Thanks for replying - although had APS for a good number of years, I was able to manage, but for some reason due to splenectomy in March and a TIA in April I am having so many problems with getting INR right and then all of the problems. I was only on Aspirin until the operation and then Heparin after for 4 months however developed TIA despite Heparin. Roll on Tommy's appt. Being on Warfarin for me is a real issue. Going for INR check tomorrow and its high cos at the moment having a nosebleed - mind you when my INR was 8.9 the other week I did not have nosebleed. Confusing or what!

SueLovett profile image
SueLovett

Hi Daisy,

I know exactly what you mean. It is a very unpleasant sensation and I think quite a few Hughes Patients get it including me. Like you it usually accompanies a dizzy episode.

Sue

nonny profile image
nonny

Hi Daisy,

only just read your post and this is my first blog. I dont have any answers I'm afraid but definitely get those dizzy feelings often with a 'far away' feeling and a short piercing headache. On my last visit to cons they suggested another MRI to see if my small vessel Isch caused by aps had got any worse but there were no changes thank goodness so perhaps there is not too much to worry about, but always worth checking out on your next visit.

nonny x

loglegmomma profile image
loglegmomma

Does it feel like hot running water?

Not what you're looking for?

You may also like...

heat type feeling in head - some days

hELLO, DOES ANYONE ELSE GET A FEELING OF HEAT IN THEIR HEAD? did explain to Haematologist in...

Heat intolerance?

Does anyone suffer from heat intolerance with hughes syndrome? I haven't actually been diagnosed...

“Vibrating” feeling in my head?

For the last two months or so I’ve had this strange vibrating feeling, as if my brain is bouncing...

Heat Therapy

I was wondering who else finds heat therapy works.This does not just help aches and pains I often...

Strange feeling in head. Derealization.

Hi everyone. Hope you are all doing as well as you can. I had the MS or APS question in the past....