thomas hospital, I already have Chrons diease aswell. They havent really told me what it is, or what it means jst that i have to be on blood thinners for the rest of my life, (clexanine as i didnt absorbe the warfin probably due to my chrons) Jst wondered if anyone could give me more information what it is and symtoms and stuff also can they treat the acutal diesese rather then jst give me blood thinners to prevent other stuff. as i feel really tired all the time my legs ache, its not blood clot pain its like musle aches, and my chrons is stable atm so it must be to do with this and the drs just havent really gave me any answers. Im 25 and live to work as i havent got any energy to do anything else! Its all been going on for bout 8mths now and i jst dont seem to be feeling any better.
Thanks
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niknak
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Hello there and welcome, there is a wealth of information from the Hughes Sydrome Foundation itself and also a large amount of members on here asking questions, giving blogs, such as yourself and contributing answers and experiences themselves.. Like yourself many of us have more than one condition. I hope you feel well supported via this forum. Mary F x
hi nik welcome, sounds like your off to a good start, jess, mary great advise . i have been on site maybe 3 months or more ?????. always a good set of ears here.. e well jet
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