Don't know what to think any more! Since Hughes diagnosis ten years ago I have also been told by St Thomas' that I don't have lupus but have some of the symptoms and also symptoms of Sjogrens. Over the last few weeks I have been having increasing pain in my back, neck, thighs and lower legs. which are tender to the touch, and am stiff in the mornings/evenings/when I sit too long My fatigue is worse than usual as well and the brain fog.
Thought it was the polymyalgia that my mother and sister have and though didn't want it know steroids can make a massive difference But my GP has said no to this from the blood results but said I tick a lot of boxes with symptoms of fibromyalgia - so came home and looked it up, which probably wasn't a good idea!!! Strangely enough one thing I did notice was some people have frequent changes of prescriptions for their glasses and that is me - the opticians have never been able to give me an explanation for why I am lucky to get two years out of a pair, or why it can change so suddenly.
Have a private appointment with a local rheumatologist on Friday to see what he comes up with. I really, really, really don't want anything else.