When cn i get my children tested 4 aps at the mo they only young?
Hey ppl: When cn i get my children... - Hughes Syndrome A...
Hey ppl
Written by
rach1081985
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6 Replies
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Hi Rach
Others on this site seem to have to fight very hard to get their children tested as the genetic link is considered sort of vague. I know a few of them will be on and will give you their stories but from memory they have had problems even with children who have had very strong Hughes symptoms.
My son (17) whom I feel has very strong symptoms - migraines, joint pains etc- has stated to me that he does not want to be tested but this was after finding out that he did have one of my other symptoms. My baby (well she's 5) has livedo but as I am seronegative I'm not sure what testing would achieve with them.
If you are worried you should speak to your rheumy for advice
Best of luck
Love Sharon x
Thnx hun my 2 r 8 n 7 mnths wld luv peace ov mind x ill hav 2 ask my haemo.take care x x
I asked my consultant this question quite some time ago and he informed me there is no juvenile/paediatric practitioners/doctors/consultants and that they would have to wait till they were at least 16 to be seen as an adult.
Now whether this is totally right I do not know, but for me I would hold off getting my daughter tested until the time is upon her to have children, especially if she is not displaying any major symptoms or problems.
I too have my suspicions about her and I am keeping a beady eye on what she tells me when she tells me she feels *weird* and I keep a mental note of it.
I want my daughter to have a chance to go into adult hood and have the ability to get private medical insurance and life insurance etc before anything like this ends up on her medical records and reduces her chance of doing so.
I can only go on how I was at her age and to be honest, I had no ill affects of APS until I was pregnant in my 20's follow by more severe symptoms as I reached 40. There were subtle symptoms in between then, which I put down to being normal for me because I didnt know I had APS.
We can only do what we feel is right and we all have an insight now with being sufferers ourselves and can know and see when things maybe are not quite right..
Annie
I am with Annie and Paddy on this one. Consider the pros and cons very carefully. Suppose they were positive..... what would you do? They don't need labels. My daughter had a hemiplegic migraine attack, along with other symptoms at 17, and was tested but negative,. Even so, she has been refused mortgage protection! So be very careful.
It is not proven that APS is hereditary, although there are clusters in families. Time will tell.
Thnx all.ill think bout it.ive bn told wen they think bout contraception it mite flag up then.thnx tho i wil weigh up pros n cons
