Made me laugh! Never lose your sense of humour or sense of the ridiculous. Believe me, it will stand you in good stead on many an occasion! Best wishes and keep laughing,
Thank you all for your kind comments. I was in a really good mood when I posted the paper bag story, feeling quite good mentally and emotionally even though I still feel a bit rotten due to having a cold and a chest infection.
I had an appointment at London Bridge Hospital with Professor Hughes on Monday, it went very well and he was as usual very kind, caring and supportive. He said I must have a blood test to check my INR as I'm on antibiotics for my chest infection and antibiotics can cause your INR to rise.
I had a blood test while I was at work last night and it was 4.7!
I know the higher the INR the higher the risk of bruising and bleeding but I just feel so 'well' at the moment. The anticoagulation clinic then phoned me this morning and said this is far too high so I have to stop taking my warfarin for 2 days then take 5mg a day until my blood test next week.
I know this will make my INR drop like a stone - that's what they want as they said it should be between 2.0 - 3.0
I know I'll have headaches, fatigue and brain-fog come back when my INR is lowered and I'm dreading feeling like that to be honest. It's like you're not meant to feel good when you have APS, you have it and we will keep your INR to what we think it should be and make you suffer! Well that's how I feel anyway
Oh well, I enjoyed my good mood while it lasted, albeit not for very long! - they've now just ended it like sticking a pin in a balloon and popping it!
Oh Suzanne, I know what you mean it's just so bloody unfair isn't it. I've been off the clexane for 3 days and the stabbing pain in my right eye and right temple is already back. But I laughed out loud at your joke, bless you. I pray that it's not too bad for you
ade me laugh out loud too!! Might pinch that for my support group if you dont mind? Thank you so much.
Reading all the comments here when the clinics and nurses tell us to do things we instinctivly know is not right for 'us' makes me want to say well why do we do it? Thats the rebellious bit in me coming out!! My instict would be to say to them what I am thinkink and suggest not to stop for two days but perhaps for one or just reduce to 5mg so the reduction is slower.
I know its all hassle and stress but sometimes i think we need to start standing up for ourselves more and perhaps putting our foot (feet?) down. Would it really hurt if just once we tried that as an 'experiment' to see if it worked, we may be educating them as much as we are learning ourselves. if it does not work we just change the dose. I am assuming that you are going to get another blood test fairly soon (like in the next week)?
Just me in my antaganistic mood this morning (following my hubby sticking a drill through the main heating pipe on saturday night - you can imagine the consequenses lol)!!!
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