Posts - PSP Association | HealthUnlocked

PSP Association

9,266 members • 11,356 posts

All posts for June 2019

Thank you all you lovely people

Thank you all for such lovely messages and kind thoughts following pete’s passing. The funeral is on Friday and at the minute I am feeling reasonably calm....

Thank you all for such lovely messages and kind thoughts following pete’s passin...

maggie4

•5 years ago

5 Replies

Cheers!

I thought I would share a moment that I had with mom this weekend at the lake house. We sat and I encouraged conversation — otherwise we would sit quietly....

I thought I would share a moment that I had with mom this weekend at the lake h...

bazooka111

•5 years ago

1 Reply

One Year today

It was one year today that my beloved passed away from the cruel disease of CBD at the young age of 59. This week has been a most difficult one for me....

It was one year today that my beloved passed away from the cruel disease of CBD ...

Beads0122

•5 years ago

27 Replies

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Meet Jim

I’d like to introduce you to Jim. He was diagnosed with PSP two months ago. Unfortunately the condition is at a late stage and his consultant says he has weeks...

I’d like to introduce you to Jim. He was diagnosed with PSP two months ago. Unfo...

5cutler

•5 years ago

4 Replies

The little things ...

We just spent a few days up at the lake house with our friend Linda. Mom loves riding around the marina on the golf cart ... we’ve yet to take the boat out,...

We just spent a few days up at the lake house with our friend Linda. Mom loves r...

bazooka111

•5 years ago

8 Replies

No Diagnosis

My friend has had symptoms of PSP for at least a year - falling backwards, gaze issues, incontinence, speech, etc. Neurologists have tried plasma exchange,...

My friend has had symptoms of PSP for at least a year - falling backwards, gaze ...

Mybeautifulfriend

•5 years ago

3 Replies

An amusing film.........

https://youtu.be/1K23TTi4X1Q Click bottom right YouTube button and then watch full screen

https://youtu.be/1K23TTi4X1Q Click bottom right YouTube button and then watch fu...

Bargiepat

•5 years ago

7 Replies

Bad day of fishing...

...still beats most other things....didn't even get a nibble. Ron

Dadshelper

•5 years ago

8 Replies

Mr. 90%

This is a post I have thought about making for a long time. After the illness both Larry and I had in March of 2015 I got more involved in his day to day care....

This is a post I have thought about making for a long time. After the illness bo...

Hidden

•5 years ago

26 Replies

A good pamphlet to help people understand

I wasn't sure how PSP was different from CBD and MSA, so I looked and found this pamphlet. Very good to share with people....

I wasn't sure how PSP was different from CBD and MSA, so I looked and found this...

Mamacass58

•5 years ago

1 Reply

In Home Therapy - lots of opinions

I wrote the original post on whether people grew tired of in home therapists. Wow, lots of responses. It seems that most people thought it was well worth...

I wrote the original post on whether people grew tired of in home therapists. Wo...

journeyofjoy

•5 years ago

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Biting inside of Mouth

I’m new to this. Does anyone have trouble with PSP and biting the inside of your mouth?Thank you in advance.

I’m new to this. Does anyone have trouble with PSP and biting the inside of yo...

Norsksue

•5 years ago

12 Replies

Feminine Itchiness

Mum has been suffering for months now with itichiness in her vulva region. If she can bypass the pad she will scratch until she bleeds. She has had swabs done,...

Mum has been suffering for months now with itichiness in her vulva region. If sh...

AJK2001

•5 years ago

19 Replies

Psp kidney failure

Hi my dad is in kidney failure with psp. Anyone experience this? Thanks

Yvonne12

•5 years ago

2 Replies

Transferring to toilet

We are having a terrible time transferring from the wheelchair to the toilet. We are using a sliding board from bed to wheelchair , wheelchair to recliner etc,...

We are having a terrible time transferring from the wheelchair to the toilet. We...

Khartt

•5 years ago

27 Replies

CBD

Hi I was diagnosed with CBD last year but reading the messages here everyone seems to initially have problems with their left arm. Am I the only one whose...

Hi I was diagnosed with CBD last year but reading the messages here everyone see...

Yve2018

•5 years ago

21 Replies

Dry, flaky skin

I read that Parkinson's Disease (and I'm assuming Atypical Parkinsonism) can cause dry flaky skin. I didn't make this up. I actually read it in a few different...

I read that Parkinson's Disease (and I'm assuming Atypical Parkinsonism) can cau...

journeyofjoy

•5 years ago

6 Replies

Growing tired of therapists in and out of the house

Does anyone else get weary of having in home health care? Although I am thankful that Medicare provides this, it's feeling like an intrusion. Lost of different...

Does anyone else get weary of having in home health care? Although I am thankful...

journeyofjoy

•5 years ago

14 Replies

PEG feeding tube

I attended an appointment to discuss having a feeding tube put in. I still manage some food and use liquid food supplements. My weight loss has slowed down. Ì...

I attended an appointment to discuss having a feeding tube put in. I still manag...

Kimmyliz12

•5 years ago

8 Replies

Am I hovering?

I’m just asking for another perspective ... I have cameras installed in Mom’s bedroom, and bathroom (pure privacy, I am the only one that has access). As I...

I’m just asking for another perspective ... I have cameras installed in Mom’s be...

bazooka111

•5 years ago

27 Replies

Lovely husband gone but not forgotten

It is with mixed feelings that I have to tell you that my lovely husband, Pete, passed away 6/6/19. I know from the many posts I have read from people in my...

It is with mixed feelings that I have to tell you that my lovely husband, Pete, ...

maggie4

•5 years ago

32 Replies

CBD progression

Hello I'm looking for some advice. My mum got diagnosed with CBD 2 years ago shes had symptoms for a while and has alien hand. Friday morning she flooded my...

Hello I'm looking for some advice. My mum got diagnosed with CBD 2 years ago she...

Bobbiejo21

•5 years ago

4 Replies

Her Baby Boy ...

I love taking my Mom for a ride, and surprise her with a visit to one of my brothers homes! Sunday we took our afternoon ride, and stopped in to see her baby...

I love taking my Mom for a ride, and surprise her with a visit to one of my brot...

bazooka111

•5 years ago

13 Replies

Excessive Weight loss

Good morning PSP family. Dave now is his 5th year of PSP has lost since December 2018 10 kilograms (22 lbs.) He is now 54 kilos (118 lbs) and 20 kilograms...

Good morning PSP family. Dave now is his 5th year of PSP has lost since Decemb...

Pavaga

•5 years ago

16 Replies

Wondering What an "Early Stage" of PSP Looks/Feels Like

Woman of 68 years new to this forum.....I've seen two neurologists who said I don't have PD but said neck pain was maybe dystonia and head tremor ET. BUT there...

Woman of 68 years new to this forum.....I've seen two neurologists who said I do...

rideabike

•5 years ago

27 Replies

PSP Conference Conclusion

The PSP Conference was very well done. The second day was geared to medical, caregiver and up to date information needed to help carers and patients. The...

The PSP Conference was very well done. The second day was geared to medical, ca...

Cuttercat

•5 years ago

7 Replies

Perfect Therapy

Dogs are not our whole life, but they make our life whole! Although Sam is part of our family, I think having a dog visit brings out something super special....

Dogs are not our whole life, but they make our life whole! Although Sam is part...

bazooka111

•5 years ago

13 Replies

Smiles for days ...

A nice surprise when my daughter surprised Mom for a sleepover at the lake house! My mom was all smiles!!! I adore how she is loved so genuinely! #Blessed

A nice surprise when my daughter surprised Mom for a sleepover at the lake house...

bazooka111

•5 years ago

6 Replies

Pivot Disc? Yes or No 👍🏻👎🏻

Mom is struggling in turning to sit down ... would anyone recommend something like this?

Mom is struggling in turning to sit down ... would anyone recommend something li...

bazooka111

•5 years ago

6 Replies

A good bye to my Dad

Hi Friends, It is very hard to say my father passed away.he was very well on that day..he took bath and his brkfst...And suddenly within 2 minutes he left...

Hi Friends, It is very hard to say my father passed away.he was very well on tha...

sonikaKharb

•5 years ago

19 Replies

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Posts - PSP Association | HealthUnlocked

PSP Association

All posts for June 2019

Thank you all you lovely people

Cheers!

One Year today

Meet Jim

The little things ...

No Diagnosis

An amusing film.........

Bad day of fishing...

Mr. 90%

A good pamphlet to help people understand

In Home Therapy - lots of opinions

Biting inside of Mouth

Feminine Itchiness

Psp kidney failure

Transferring to toilet

CBD

Dry, flaky skin

Growing tired of therapists in and out of the house

PEG feeding tube

Am I hovering?

Lovely husband gone but not forgotten

CBD progression

Her Baby Boy ...

Excessive Weight loss

Wondering What an "Early Stage" of PSP Looks/Feels Like

PSP Conference Conclusion

Perfect Therapy

Smiles for days ...

Pivot Disc? Yes or No 👍🏻👎🏻

A good bye to my Dad

Search posts

Latest poll

What are your main concerns as a carer?

Topics

Archive