Good morning PSP family.
Dave now is his 5th year of PSP has lost since December 2018 10 kilograms (22 lbs.) He is now 54 kilos (118 lbs) and 20 kilograms (44 lbs) from onset.
Doctor asked him if he wanted a PEG tube and he said NOT.
Because inconsistency, specially at night, now he is wearing disposable pants. He didn’t want to and I explained to him it saved time for laundry, smells and mattress.
Dysphagia progressing day by day, he is supposed to be in a soft diet but I let him eat, excepts for rice and beans, whatever he wants practicing the techniques taught at the therapy and it has worked so far. I used lots of butter, milk and he has a Ensure everyday.
I am emotional devastated and I would like to hear your advice, what to expect next and the question that probably sounds cruel but how long?
I appreciate the support and all the great knowledge from this site since it is the only place where you find true answers.
My love, Patty