Posts - PSP Association | HealthUnlocked

PSP Association

9,626 members•11,552 posts

All posts for June 2019

Rainy Day Challenge

We’ve had some beautiful days at the lake, but when the rain moved in we worked together on a 300 piece puzzle. I call it a “bad diabetic” puzzle of decorated...

We’ve had some beautiful days at the lake, but when the rain moved in we worked ...

•5 years ago

Transferring from lift chair

I've been researching standing devices for my husband and have had many helpful suggestions from this community. Have looked at Sara Stedy and also Lumex. I...

I've been researching standing devices for my husband and have had many helpful ...

•5 years ago

Spontaneous Dancing

I was helping mom get up out of her chair today, with the wheelchair on standby ... the music was playing a new song by Thomas Rhett called “Blessed” ... it...

I was helping mom get up out of her chair today, with the wheelchair on standby ...

•5 years ago

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PSP Conference Day One

The first afternoon has been Support Groups. Some of us widowed and veterans of the disease helped newcomers and newly diagnosed. It was emotional but very...

The first afternoon has been Support Groups. Some of us widowed and veterans of ...

•5 years ago

New Publication available 'CBD: what to expect from your care'

Hi all, Just read in the PSPA Matters magazine, that there is a new publication titled 'CBD: What to expect from your care' I have just ordered a copy from...

Hi all, Just read in the PSPA Matters magazine, that there is a new publication...

•5 years ago

Thank you for your support during the worst week ever

Good morning I am writing this to thank everyone for your help and support last week and over this last weekend. You are all so amazingly supportive in this...

Good morning I am writing this to thank everyone for your help and support last...

•5 years ago

Sara Steady or some other brand?

Hello Community, My husband is ready for a Sara Steady or something similar. Is Sara Steady just a brand name? Is there another model that works just as well...

Hello Community, My husband is ready for a Sara Steady or something similar. Is ...

•5 years ago

PSP Conference - Attending Tomorrow

I'm attending the PSP Conference here in Raleigh, NC. It's the national PSP USA conference and will start tomorrow and go through Friday. I'll report back to...

I'm attending the PSP Conference here in Raleigh, NC. It's the national PSP USA...

•5 years ago

Worth a read.

https://thejollywidow.com/difference-processing-grief-vs-drowning/ This was sent to me by a friend this morning who lost her husband to cancer 2 years ago....

https://thejollywidow.com/difference-processing-grief-vs-drowning/ This was sent...

•5 years ago

"The researchers noted that this is the first anti-tau therapy shown to hit its target in PSP PATIENTS"

For your analysis:...

For your analysis:...

•5 years ago

Refused rehab

Dad as psp he was took into hospital 3 weeks ago with a chest infection which responded well to antibiotics. We got told a week ago that as he his medically...

Dad as psp he was took into hospital 3 weeks ago with a chest infection which re...

•5 years ago

Those little moments ...

You could have never told me that this would be a journey we would be on. My mom has always been a kind and gentle soul, and as an accomplished seamstress,...

You could have never told me that this would be a journey we would be on. My mo...

•5 years ago

Netflix

Finally broke down and signed up for Netflix thinking when Larry got up during the night I could park him in front of the TV until I got up. It turns out so...

Finally broke down and signed up for Netflix thinking when Larry got up during t...

•5 years ago

Lake Time ..

Brought Momma to the lake house - yes, prepping both houses for the changes that we are experiencing. But — I needed to get away and Momma loves sitting on the...

Brought Momma to the lake house - yes, prepping both houses for the changes that...

•5 years ago

Since our holiday in Devon

Whilst we were on holiday in Devon a couple of weeks ago, my husband experienced a few seizures. Something that he hasn't had before and since then he has been...

Whilst we were on holiday in Devon a couple of weeks ago, my husband experienced...

•5 years ago

Communication aids - recommended?

Hi. My mum passed a week or so ago from cancer and we’ve spent a better part of her decline putting things in place for Dad’s inevitable PSP dip due this....

Hi. My mum passed a week or so ago from cancer and we’ve spent a better part of ...

•5 years ago

Elevated Toilet Seats - Any Recommendations?

So .. MAN! Things are changing by the day it seems. In the last two weeks, Mom has fell twice in the bathroom -- I am frantically trying to make the proper...

So .. MAN! Things are changing by the day it seems. In the last two weeks, Mom...

•5 years ago

Stem Cell research (CIRM) in California

http://enewspaper.latimes.com/infinity/article_share.aspx?guid=f28f53f3-66e2-4040-8e85-6eed321a69b4 "Still the proposition 71....led voters to believe that...

http://enewspaper.latimes.com/infinity/article_share.aspx?guid=f28f53f3-66e2-404...

•5 years ago

Yet another potential diagnosis??

We have been waiting for a diagnosis for my husband and although I know it's difficult to pin these things down, we were expecting a PSP diagnosis. I just got...

We have been waiting for a diagnosis for my husband and although I know it's dif...

•5 years ago

Finally at peace

My sweetheart and soulmate said his final goodbyes on Wednesday evening May 29. He contracted a nasty upper respiratory infection the beginning of May and due...

My sweetheart and soulmate said his final goodbyes on Wednesday evening May 29. ...

•5 years ago

Sleeping

Evening everyone. My husband struggles to get a decent nights sleep due to his PSP and unfortunately tinnitus. Our drs are fantastic and prescribe sleeping...

Evening everyone. My husband struggles to get a decent nights sleep due to his P...

•5 years ago

My Dinner Date

Distance makes the heart grow fonder for sure! I missed my Momma this past week while away on business. So after returning today, I swooped her up and she was...

Distance makes the heart grow fonder for sure! I missed my Momma this past week...

•5 years ago

Friends

The best thing about this site is that even if you don’t know everyone else in person, they all understand what is happening to you and your spouse or parent....

The best thing about this site is that even if you don’t know everyone else in p...

•5 years ago

What is happening to me?

Hi everyone I have had my worst week so far. I am not coping without Les at all. My daughter has moved her boyfriend in and my house doesn't appear to be my...

Hi everyone I have had my worst week so far. I am not coping without Les at all....

•5 years ago

CHC review.

My wife who has PSP and is in a nursing home is due a CHC review shortly can any one who has been through this please advise if It would be advisable for me to...

My wife who has PSP and is in a nursing home is due a CHC review shortly can any...

•5 years ago

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