PSP Conference Conclusion: The PSP... - PSP Association

PSP Association

9,265 members11,356 posts

PSP Conference Conclusion

Cuttercat profile image
7 Replies

The PSP Conference was very well done. The second day was geared to medical, caregiver and up to date information needed to help carers and patients.

The Association was so helpful and provided some fantastic largesse ie: a photo opportunity, by professional photographers, to take photos of ourselves and our loved ones. It was so sweet. There were attendees from far and wide including Japan, Ireland and Germany.

Many attendees needed any kind of answers we veterans could provide and I tried. The emotional aspects were difficult, especially for the widowed but it was worth attending. Meeting others and making friends, PSP does that doesn't it, darn it.

Video and slides from the conference will be available in a few weeks. They will have it on their YouTube page.

To see the listing of the paper material that was available at the conference please go to this link: psp.org/ineedsupport/resources/

Thank you for all your support. I'm still struggling but glad I attended.

Cuttercat

Written by
Cuttercat profile image
Cuttercat
To view profiles and participate in discussions please or .
7 Replies
Marie_14 profile image
Marie_14

Well done you! What you did was brave and very helpful to others I am sure. Not sure I am that brave but would like to think I might be. Think I am better on a one to one basis. I will be looking forward to seeing the recording.

Hugs.

Marie x

Dadshelper profile image
Dadshelper

Well done on helping the newly Dx families and patients. There are just some things you can't learn from a book and it takes hands-on doing, with failures along the way, to figure things out.

Ron

Katiebow profile image
Katiebow

What a valuable contribution for you to be there and available to give help and information, I truly admire what you have done. It must have been painful at times but also cathartic too. Thanks from us all.

Kate xxx

Yvonneandgeorge profile image
Yvonneandgeorge

Well done xxx

Heady profile image
Heady

Well done Cuttercat. Glad you got something out of this conference as well as contributing.

Lots of love

Anne

Once more l am late to check pm chat... just now saw your message. My tablet does not allow me to reply.

We are in the Greater St. Louis area. If you saw the St. Louis Arch as you drove through it might have been possible for us to meet for coffee (which would have been lovely). I am so proud of you for attending the conference. Sending Hugs... Granni B

Cuttercat profile image
Cuttercat

I’ll be moving closer to you. I’ll check in for that coffee!

Cuttercat

You may also like...

PSP Conference - Attending Tomorrow

I'm attending the PSP Conference here in Raleigh, NC. It's the national PSP USA conference and will

PSP Conference Day One

afternoon has been Support Groups. Some of us widowed and veterans of the disease helped newcomers...

Cure PSP Family Conference in Rochester

if anyone in the U.S. is planning to attend this conference on PSP/CBD/MSA at the end of June? I...

PSP conference in New York

This past weekend my husband and I attended the PSP conference in Flushing, New York, sponsored by...

PSP and \"freezing\"? PSP in Africa

diagnosed with PSP. He lives in Zimbabwe. (anyone else out there?) I don't think PSP is so well...