No Diagnosis

[Mybeautifulfriend]

My friend has had symptoms of PSP for at least a year - falling backwards, gaze issues, incontinence, speech, etc. Neurologists have tried plasma exchange, ivig, and given all MRI's CT scans etc. No one seems to be motioning in the direction of PSP other than the first neurologist who asked for second and third opinions. I think my friend wants to know but is afraid to know... and so not pushing it. Doctors are so hesitant... when do most diagnose and based on what?

[enjoysalud]

I recommend you watch on YOUTUBE Jim Bower of the Mayo clinic...."Making a diagnosis of PSP, CBD, or MSA". It explains the hesitancy and challenges of making the DX.

Los Angeles, CA, USA

[Hidden]

The only way to truly know if it is PSP is by a brain biopsy after death. There are stories on here of people who had thought their loved one had PSP as did the doctors only to find out it was another neurological disease when the brain was biopsied.

[raincitygirl]

If you click on my avatar or username, you'll go to my page of posts: Look down about a year ago to one titled Updated Summary: Time from First Symptom to PSP or CBD Diagnosis.

You may find that interesting.

Anne G.