I'm back from a long needed vacation. Once the thought of having a break was a very wise decision and was suggested by many, (including all of ya'll), I couldn't get out of town fast enough. Lol! I hastily put together a plan of action, acquired a caregiver(BF of my sister's),called my friends for a place to stay, made my flight reservations and tried to prepare the caregiver of all that transpires during a given day and night. As if I could really prepare someone for what we all do. Silly girl! Granted it wasn't the ideal setup for the situation, but if I didn't get away, I was going to lose my mind and what patience I had left. I was soooo excited I left updates of my progress every 15 minutes on FB. (ie. on the road to airport, checking luggage, at boarding gate, etc) Really quite comical, at least my friends loved it. Lol! I arrived at my BF's house and proceeded to talk nonstop and at warp speed explaining all that I have dealing with. Lord, I needed to purge all those thoughts and feelings. Fortunately, my BF just listened and empathized, then told me go take a nap. Ha! Well, I passed out on the bed face first and didn't wake up for 4 hours. I guess I was a little tired. We then proceeded to go out to dinner and visit with old friends. It had been 7 years since I saw them last. Wow! The rest of the week was filled with shopping, naps, dinners, naps, visiting friends, naps, wine and more naps. I thoroughly enjoyed myself and only worried a little bit what was going on at home. I had a sneaking suspicion that things were taking a nasty turn. I knew going in that my sister's friend that was taking care of her and my dad was opinionated and wanted to do things her way, but I went anyway. Before I even left she was already taking command and changing the system that was working for us. Needless to say, she proceeded to try and make things "better and more efficient" and "to help fill in the gaps" where needed. She quickly found out that taking care of someone with PSP is not a piece of cake, she also had the added icing of taking care of my dad. I had left her with reinforcements of my cousins and hired caregivers and she still had to call in her own reinforcements of another friend of my sister's. Somewhat funny and enlightening. But, her friends proceeded to over step their bounds and looked into my sister's financial and health plans and tried to change those things as well. This is where I began to think taking time off wasn't such a good idea. I was furious and extremely hurt that they would think so little of me to "look into" how my sister was being cared for. I am still having problems handling those thoughts. As I was driving home from the airport, I had to get my cousin to go and relieve her before I arrived home. I couldn't face her for fear of what I may say or do. I know they meant well because they love my sister very much. But, it would have been nice if they had long ago come and ask me what they could do to help and not force themselves or their opinions on us. As I have mulled over these happenings and heard my sister's and dad's reactions to their care, I don't feel as bad. They didn't like the changes and were glad to have me home. My sister even said she forgave me for leaving. Ha! I really needed the "Me" time and I really don't regret taking that time, but there was a price to pay. There will be a next time, maybe timed a little better and better planning. I do foresee needing another break down the road. I'm sorry for being so "long of tooth", but I guess I needed to get it off my chest and talk it over with you, my comrades in arms. So, now I will turn it over to you. Let me know how I could have done it better. Thanks for your patience and continued support. Gracie girl
One of my posts on FB while on vacation.