So proud of him.

[hellebore]

Hi everyone. Everyday I get asked about what is wrong with F and everyday I go through the same script, hopefully spreading the word and encouraging more awareness about PSP and CBD.

Most of us on here are carers or sufferers but there are many more friends and family who care and do their bit as well. I want to say a huge thank you to them for being there; shopping, cleaning, fixing things, picking up prescriptions, making the tea, being on the end of the phone and for fundraising.

31st July, in London the Ride100 is happening and many people are involved as sposored riders on behalf of PSPA. I know someone who is doing this for the second time this year and I shall be supporting him all the way. If I am allowed to do this, here is the link to the Justgiving website

justgiving.com/fundraising/....

There are others as well and they all need support and help. Please tell everyone. Its not just the money to keep the association going but also the raising of the profile.

Thank you.

[hellebore]

Sorry folks. Apparently the link has not worked. May I suggest you type in justgiving.com then add /fundraising/George-Davey2

[Satt2015]

I agree!!

Raise awareness!!

Raise funds!!

Get a CURE and medications for this bloody awful crappy s****y illness ASAP

I HATE you Psp and I HATE all the people you affect!!

X

[Amilazy]

Thanks Hellebore, I had missed this fundraiser for PSPA.

[abirke]

HB, thank you for giving so much to fighting PSP. Let me just add, if your patient has not donated their brain to fight the cause and find a cure, please consider it....It is so important to study the tissue of an actual brain that suffered with this particular disease. Everyody can donate time and money, and should; only a few can donate their brain! B has donated his when the time comes! my brain has left me long ago...Hahaah

AVB

[BindiLeech]

Hi there everyone ......particularly Hellebore ???? I was wanting to touch base with you, as I posted your last post online last night and so far I have had a very favourable response. I am SO pleased to hear that there are some people in this world who are fundraising for "our" cause - and all the best to them on July 31st!!!!!! Xxxxxx