Hi Update on My APS: Hi it's been an... - Hughes Syndrome A...

Hughes Syndrome APS Forum

10,414 members10,622 posts

Hi Update on My APS

Debbweb01 profile image
6 Replies

Hi it's been an overwhelming 3-4 months! I don't get the pleasure of reading fb or this site, due to no time! I've been caring for my husbands aggressively moving bladder cancer! After 2nd surgery, he's had heart attack on 3/22/2017! Needless to say I've been busy! Thank The Good Lord my APS has been under control since I'm on Lovenox/Enexoparin shots! Although when I get run down it affects my teeth and today another scared extraction where 20 years ago my jaw was fractured due to a wisdom tooth! Well this tooth is on fracture line and I'm scared! Lol... it'll all be fine! My hubbys Alzheimer's liked in more from surgery and heart attack! Yes I fell thru the cracks against a NYC Famous hospital! Too bad, but I saved his life! I hope Y'all are well! I'll be getting gel shots in my knee, the stump I have left! Has anyone out there gotten Synvisc or ORTHOVISC shots in knee! Unfortunately I need this knee to be ok cuz I won't walk without it! My loss of weight and shrinking leg where it was removed, I now walk on bone and my leg people don't really know what to do for me! They did tell me I'm not like their other patients! With all the blisters and them remaking new leg they messed up on, they want to c the back of me! But they won't cuz my legs costs $15,000 each! I'm not about to give in to it yet! Make it right the first time, then they won't have to remake it! Lol... I'm just getting very tired of fighting for my health issues! Miss y'all! Hope my Swedish friend is good and Lynn, Mary, and The English Gentlemen! My memory fails me once again! 4give me! GODSPEED

Written by
Debbweb01 profile image
Debbweb01
To view profiles and participate in discussions please or .
Read more about...
6 Replies
Wittycjt profile image
Wittycjt

Nothing to forgive! Only thing hasn't happened is you getting kicked in the head as, they have already been kicking your a--. I was wondering where you were. Have they given you a stump sock, most times you have to be "fitted" for this, but it can make you a lot more comfortable. Glad to hear your on lovenox now, me too. So much better isn't it?

Last I heard from you you were going to your car so you would have time for yourself to regroup. You speak of hubbies heart attack and surgery. I wasn't aware he also has Alzheimer's disease. How did the bladder surgery turn out? Is the cancer progressing? Sorry so many questions trying to catch up. Hugs to you my friend💕

Debbweb01 profile image
Debbweb01 in reply toWittycjt

Yes it's a very aggressive cancer! It went from early stage to stage 2 within 6 weeks! They say he has a 50/50 chance of survival! I had tooth extraction and now infection! I'm very mentally and physically exhausted! Trying to keep positive! When did you go on shots? Yes so much better! Love to u all! GODSPEED

Wittycjt profile image
Wittycjt in reply toDebbweb01

Did you find out about the stump sock? Went on shots almost one month ago! So sorry to hear about your hubby🙏🏻

Lure2 profile image
Lure2

Hi Debb,

I have been thinking of you! Good to hear from you as always.

Stick to the Lovenox shots! I am ok as always.

A big Hug to you from Stockholm and Kerstin. GODSPEED

Yllek profile image
Yllek

Nice to have an update from you but I'm sorry to hear how poorly your hubby is. Sending lots of strength and love x

Rosemary76210 profile image
Rosemary76210

Debb, I pray things get better for you very soon. I have had the Synvisc shots in my knee and they did help for a while. It was a series of 3 shots, just a bit uncomfortable, more an intense feeling of pressure than pain and that quickly passed. Definitely worth trying. I am scared to get a knee replacement since my eye stroke happened after cataract surgery (provoked is the term they used). I lost a good deal of vision in that eye, so I don't want to do anything that would provoke something worse. My goal now is to remain upright.

Not what you're looking for?

You may also like...

Update and Lots of new aches and pains!

Hi All my APS FRIENDS! Well it's Election Day Eve in America! IM PRAYING to The Good Lord that The...
Debbweb01 profile image

Migraine Update

It's going on day 5-7 days of this migraine! Went to my friend and Cardiologist whom I use to work...
Debbweb01 profile image

Update on MRI's

Hi I had MRI of knee and throat and decided I couldn't afford to go back to DICS to get result!...
Debbweb01 profile image

Hi Kerstin!

Hi Kerstin! So sorry I didn't know I was in Clair's site so sorry! Now I know! I have been recently...
Debbweb01 profile image

Info I got on Xarelto

My Hemotologist told me they're doing studies and we may be able to use Xarelto as blood thinner!...
Debbweb01 profile image

Moderation team

See all
KellyInTexas profile image
KellyInTexasAdministrator
MaryF profile image
MaryFAdministrator
HollyHeski profile image
HollyHeskiAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.